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Little Hearts Matter

Welcome to Little Hearts Matter ❤️ We are the only national UK charity offering specialised support to anyone affected by the diagnosis of single ventricle heart condition.
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Family Stories

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“Our lives were turned upside down” – Fiona’s Story
Family Stories January 8, 2022

“Our lives were turned upside down” – Fiona’s Story

In 2012 James and I were overjoyed to be expecting a baby due in April 2013 On Friday 7th December 2012 our lives were turned upside down when at our
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‘It was one of the most difficult and uncertain times in our lives’ – Daniela’s Story
Family Stories January 8, 2022

‘It was one of the most difficult and uncertain times in our lives’ – Daniela’s Story

We’ve relied on so much support from LHM over the years. LHM were crucial in the antenatal period, providing advice on what to expect at birth, in the initial operations,
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“Life in 2020 remains unknown” – Maggie’s Story
Family Stories January 8, 2022

“Life in 2020 remains unknown” – Maggie’s Story

Daniel’s was born in Malaysian Borneo, and rushed with a medical escort at 3 months old to Alder Hey hospital, where his life was saved. We tried to return to
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‘Another Dad Said That Seeing Isobel…Had Given Them Hope’- Paul on his daughter Isobel
Family Stories January 8, 2022

‘Another Dad Said That Seeing Isobel…Had Given Them Hope’- Paul on his daughter Isobel

Sitting there cradling in the dark and peering into the unknown, I realise now we were both on the edge in those first months after Isobel was born. But being
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‘I’m His Dad Not His Doctor’- David’s Story
Family Stories January 8, 2022

‘I’m His Dad Not His Doctor’- David’s Story

Father’s day 2013 was a good day; a good day in a shockingly awful month. Alasdair was well enough to get to the shop at the entrance to St Thomas
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‘I Can’t Make It (Luke’s Heart) Normal’- Joanne, Martin, Ethan, and Luke
Family Stories January 8, 2022

‘I Can’t Make It (Luke’s Heart) Normal’- Joanne, Martin, Ethan, and Luke

Luke’s family reflect together on their experiences of having a loved one with a congenital heart condition. After the anomaly scan revealed that Luke would have half a heart among
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‘We are prepared to spend his first birthday in hospital, and that’s OK’- Laura on her Son Lennox
Family Stories January 8, 2022

‘We are prepared to spend his first birthday in hospital, and that’s OK’- Laura on her Son Lennox

There can be so much confusion about suddenly being told you’ll have a child with half a heart when you’ve had healthy children in the past. Laura went through this
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‘I Thought It Happened To Other People Far Away’- Maia on her son MacFhionnlaigh
Family Stories January 8, 2022

‘I Thought It Happened To Other People Far Away’- Maia on her son MacFhionnlaigh

Maia is the mother of MacFhionnlaigh, who has Hypoplastic Left Heart syndrome. She writes how Mac entering her and her family’s life has molded them into better people. He has
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Jessica and Vinnie
Family Stories January 8, 2022

Jessica and Vinnie

Vinnie and his family’s heart journey started when they were sitting in the maternity ward and Vinnie wouldn’t feed. Matthew, his father immediately arrived at the hospital to support them.
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Michelle’s Story
Family Stories January 8, 2022

Michelle’s Story

Michelle Rose is the mother of Elijah, a ‘little bean’ with a series of conditions such as Double Inlet Left Ventricle, Transposition of the Arteries, Hypoplastic Right Valve, and Sub
Read more
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