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LHM Parent & Children Stories

These stories have been kindly written by LHM parents and children living with a single ventricle heart condition. If you are an LHM parent and have a story to share, please let us know by using the contact form at the bottom of this page.

Hayley & Dexter

Marley was born on a very special day, 22/02/22 with a diagnosis of Hypoplastic Left Heart Syndrome.

Ivy's Story

My name is Ivy and I am 6 years old. I am in year 1. I have a special heart and I have had 3 heart surgeries at Alder Hey.

Evita & Ziggy

At 24 weeks of pregnancy we found received the news that our little girl would be born with half a working heart.

Vikki's Story

Nothing prepared us for the news that our ‘Peanut’ had Pulmonary Atresia with VSD and Major Aorto-Pulmonary Collateral Arteries.

Claire & Vinnie

Claire carried her four year old son Vinnie to his heart operation not knowing if he’d survive. It was the height of the pandemic.

Dan's Story

Our brave fighter Ellis, was born 10th November 2009 with Tricuspid atresia, VSD and severe pulmonary stenosis.

Little Hearts Matter will always obtain full consent-to-share before publishing stories about our members. If you wish to re-share anything found on this page, please contact us using the form below to request consent.

This page was last updated in April 2023.

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