Thank you for visiting our website. Little Hearts Matter is the only charity in the UK dedicated to supporting and empowering anyone affected by the diagnosis of a single ventricle heart condition – or half a working heart.

We support families along every step of their journey, from initial diagnosis, through treatments and into life at home.

Our core focus is to offer support and information to our members. However, we’re equally committed to raising awareness of our children’s conditions and the challenges these bring to their families. In doing so, we actively seek ways in which we can take our members’ voices into arenas for change.

Our mission

To provide a support and information service that reduces the isolation, fear and the lack of understanding experienced by families when a child is diagnosed with having half a working heart.

How we support our members

Support: Support is at the heart of all that we do. Our free service exists to ensure members have access to all the information they need, a friendly voice to speak to and a community that understands their journey.

Inform: We provide our members with accurate information that is completely free of charge and which covers every single aspect of the half a heart journey, starting with antenatal information right through to living with half a heart.

Empower: Our members experience feelings of fear, isolation and lack of understanding. No one should live with these feelings. We’re completely committed to equipping our members with support and information, thus empowering them and their families to live the very best lives they can.

Our vision

To see families able to cope with the diagnosis, treatment and lifestyle challenges created when a child is diagnosed as having only half a working heart.

Be social with us - our latest tweets and posts

    Hope 🌈

    "Hello! This is my first time posting since recently joining this group. Here’s my favourite lock-down picture of my son Toby (Complex Pulmonary Atresia), he’s just over 2 years old."

    "We’ve been shielding and now very nervously trying to get back to some normality...for Toby and his 5 year old sister."

    Quote shared by LHM parent member Carlie x
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    2 days ago  ·  

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    Reaching Milestones in Lockdown | Elijah's Fontan Progress

    An update from LHM parent member Michelle, mum to Elijah who had his Fontan operation 2 years ago...

    "Hard to believe this was 2 years ago, and then a pic of him now! 😍 We couldn’t have got through our journey so far without the amazing support from the NHS and the LHM team. We will always be thankful."

    Half a Heart, Not Half a Life x
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    3 days ago  ·  

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