Thank you for visiting our website. Little Hearts Matter is the only charity in the UK dedicated to supporting and empowering anyone affected by the diagnosis of a single ventricle heart condition – or half a working heart.

We support families along every step of their journey, from initial diagnosis, through treatments and into life at home.

Our core focus is to offer support and information to our members. However, we’re equally committed to raising awareness of our children’s conditions and the challenges these bring to their families. In doing so, we actively seek ways in which we can take our members’ voices into arenas for change.

Our mission

To provide a support and information service that reduces the isolation, fear and the lack of understanding experienced by families when a child is diagnosed with having half a working heart.

How we support our members

Support: Support is at the heart of all that we do. Our free service exists to ensure members have access to all the information they need, a friendly voice to speak to and a community that understands their journey.

Inform: We provide our members with accurate information that is completely free of charge and which covers every single aspect of the half a heart journey, starting with antenatal information right through to living with half a heart.

Empower: Our members experience feelings of fear, isolation and lack of understanding. No one should live with these feelings. We’re completely committed to equipping our members with support and information, thus empowering them and their families to live the very best lives they can.

Our vision

To see families able to cope with the diagnosis, treatment and lifestyle challenges created when a child is diagnosed as having only half a working heart.

Be social with us - our latest tweets and posts

    It is essential when booking a holiday that you make sure that you have good travel insurance that includes repatriation (returning to the UK for a sick child and a parent). Call a variety of different insurance companies to get the best policy and price. You can try specialist companies that deal with pre-existing medical conditions, however some high street insurers can also insure people with congenital heart conditions.

    We have a list of travel insurance companies that our members have used (linked below). We cannot recommend any particular company, this is purely a guide and we must stress that you need to make sure your policy meets your needs. Even if they do not ask, make the insurance company aware of your child’s heart condition.

    Download our member-provided travel insurance list onto your smartphone here: bit.ly/2FNsFnl

    We also have a full travel insurance guide here: bit.ly/2FZZrSt
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    2 hours ago  ·  

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    @South Wales and South West Congenital Heart Disease Network (SWSW CHD) have recently launched their ‘my question’ campaign, in partnership with Wallace & Gromit's Grand Appeal.

    Over the next 9 weeks, they will be asking questions raised by their cardiac families, to which they will respond and “signpost to information and ideas to help you find an answer which works for your own situation.”

    Please take the time to give them a follow and get involved in the discussion, as cardiac families your input is incredibly valuable.
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    17 hours ago  ·  

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