Welcome to the Little Hearts Matter registration page.

Becoming a member or associate member of Little Hearts Matter could not be easier and is free to anyone seeking support and information because they are affected by a diagnosis of a single ventricle heart condition.

Full membership of the charity

Full membership is open to adults with a single ventricle heart and to parents, and grandparents, of a child diagnosed as having a single ventricle heart, resident in the UK or Ireland.

Membership entitles you to access full support from the LHM team, regular newsletters and  hard copies of written booklets;contact from regional supporters and invitations to national and regional events; and access to all open social media forums and membership of the closed Member only Facebook sites. It also entitles you to vote on annual accounts and the membership of the Board of Trustees.

Child and young person membership

Child and Young Person Membership is open to any child or young adult (under the age of 18) living with a single ventricle heart condition.

Membership entitles you to access support and information from the LHM youth and support team; to regular, age-appropriate newsletters, web and written information; as well as to invitations to regional and national events.  When you reach 13 membership will entitle you to join in with youth social media forums.

Associate membership of the charity

Associate membership is open to:

  • Parents and grandparents of children with single ventricle hearts outside the UK.
  • Extended family members from within the UK and abroad, for example, aunts, uncles and siblings.
  • Health, education and social service professionals.
  • Friends of the charity.

Associate membership enables you to seek support and information from the LHM team, to access website  and email news and information, and to access public LHM forums.

If you would like to become a member we would love to hear from you. Select the section below that relates to you and click to find the appropriate registration form.

Be social with us - our latest tweets and posts

    Colin, Grandparent to Thomas who is 15 and was born with Hypoplastic Left Heart Syndrome, talks about when he learnt that his unborn grandson had only half a heart.

    “Imagine the anguish of excited grandparents who are eagerly awaiting the results of their daughter's 20 week scan only to find that their unborn grandson has a major heart condition.”

    "Being referred to Little Hearts Matter seemed an empty consolation, yet this wonderful charity has provided support, encouragement and, probably most important, hope both before birth and in the 15 years subsequently."

    Alongside his wife Christine, Colin has raised over £8,600 for Little Hearts Matter this year alone, providing us with vital resources that we need to support our families and make them feel less frightened and isolated throughout their half-a-heart journey. Thank you so much for everything you have both done for us.

    We hope you can take some inspiration from Colin's passion and generosity this Christmas, follow in his footsteps and purchase a patch on our Visufund blanket.

    Click here to donate: www.visufund.co.uk/lhm-wrap-a-blanket

    Thank you ❤
    ... See MoreSee Less

    11 hours ago  ·  

    View on Facebook

    A massive thank you to the amazing Rowan who was the narrator in our Christmas video!

    Rowan is a big brother to Bobby who has half a heart and he kindly stepped in to help us tell the story of so many half a heart families. We think he did a fantastic job!

    If you haven't done so, please go to visufund.co.uk/lhm-wrap-a-blanket to buy a patch and wrap a blanket of support around more families like Rowan's.

    Thank you ❤
    ... See MoreSee Less

    1 day ago  ·  

    View on Facebook