Youth Stories - Little Hearts Matter

LHM Youth Stories

These stories are here to help you learn more about Little Hearts Matter Youth Members aged 11-17 living with a single ventricle heart condition. If you would like to share your own story, please contact us using the form at the bottom of this page, we would love to hear from you.

Jessenia's Story

"My name is Jessenia, I am 19 years old and have a single ventricle heart condition. In October 2023, I started a 2-year level 3 apprenticeship at my local hospital in Milton Keynes to train to become a registered pharmacy technician."

Helena's Story

My name is Helena Grace, I am 17 years old and I was born with a serious heart condition called Hypoplastic Left Heart Syndrome.

Amber's Story

After a year absent from school Amber who has Pulmonary Atresia, returned to school, sat an exam and achieved the highest score in the class.

Imaan's Story

At her twenty week scan Ferdie received the devastating diagnosis that her daughter Imaan had an incurable heart condition.

Anise's Story

Hello my name is Anise and I was born with a complex congenital heart condition called Tricuspid Atresia.

Holly's Story

Little Hearts Matter has helped me to understand my condition and show there's other people like me.

John's Story

At 22 weeks, the doctors confirmed Anne Marie's baby would have a form of CHD called Hypoplastic Left Heart Syndrome.

Little Hearts Matter will always obtain full consent-to-share before publishing stories about our members. If you wish to re-share anything found on this page, please contact us using the form below to request consent.

This page was last updated in April 2023.

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