Little Hearts Matter is a national UK charity offering help to anyone affected by the diagnosis of single ventricle heart condition.

From initial antenatal diagnosis, through treatments and into life at home, the charity works with children, young adults and families to reduce the isolation, fear and lack of understanding created when a child is diagnosed as having half a working heart.

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    "We will never forget hearing the words "he might not survive.""But Loki showed us he was a true fighter.""Sometimes I feel people forget how serious his condition is, because "he is doing well" yes and showing everyone he is battling on, with the biggest smile, the cheekiness and his little ways but yet just one little thing could mean he could end up back in hospital".Shared by LHM member Emma, heart-mum to Loki here who was born with HLHS. Thank you. ... See MoreSee Less

    2 days ago  ·  

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    "We spent Jordan's 12th birthday at Blackpool Pleasure Beach, he's a real adrenaline junkie! (We did, of course, get the green light from our cardiologist first!)Jordan's first few years were rough, he spent more time in hospital than at home. He was so poorly for years and needed a wheelchair, oxygen and feeding tube for over half his life. Fast forward to now, Jordan has been stable for the last few years. Sometimes I forget he has half a heart, not because we have forgotten, but because he is living life to the full. Jordan still has challenges in life related to his heart, but we have embraced that our "normal" is different and we welcome that into our routine.We have gone from living out of suitcases hours away from home to feeling lucky and cherishing every moment whilst things are like this x."Shared by Elis, heart-mum to Jordan here, thank you. #mynormalisdifferent ... See MoreSee Less

    2 days ago  ·  

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