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Little Hearts Matter
  • Seek Support
    • Calling our Support Line
    • Antenatal Support
    • Social Media Support
    • Regional Support
    • Bereavement Support
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    • Other Support
  • Seek Information
    • Antenatal Diagnosis
    • Diagnosis
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    • Congenital Cardiac Hospitals
  • Stories
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Family Stories

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“This is the reality of being a Heart Mummy” – Jade’s Story
Family Stories January 9, 2022

“This is the reality of being a Heart Mummy” – Jade’s Story

We try to stay so strong, with a smile on our faces to make sure our little ones don’t see how much we hurt on the inside, knowing that they have
Read more
Claire & Vinnie’s Story
Family Stories January 9, 2022

Claire & Vinnie’s Story

Claire Holliday, from Birmingham, is mother to 4 year old Vinnie who is waiting for a heart transplant. They’ve been in and out of hospital throughout the last year. Claire
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Maggie and Daniel’s Story
Family Stories January 9, 2022

Maggie and Daniel’s Story

The pandemic and lockdown has created monumental changes for young people.   Parents of young people with half a heart have been living with fear and anxiety.  Those with added learning
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Life For A Heart-Family In 2021 – Jen’s Story
Family Stories January 9, 2022

Life For A Heart-Family In 2021 – Jen’s Story

Jen is heart-mum to Sophie who is 11 and has Hypoplastic Left Heart Syndrome. Jen talks about her experiences of lockdown as a heart-family and how their normal is different.
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Heart Surgery During A National Lockdown – Max’s Story
Family Stories January 9, 2022

Heart Surgery During A National Lockdown – Max’s Story

Hello world. Max (youngest of four siblings) was born early on the 2nd of Jan 2020. He was scheduled for a planned C-Section on the 6th of Jan, but had
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Our HLHS Journey and why I created an app for families like ours
Family Stories January 8, 2022

Our HLHS Journey and why I created an app for families like ours

Having a child is an exciting journey – and when you have your first, it’s like a great big step into the unknown. When I was pregnant with Maisie, like
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LHM Father’s Day 2020 – Paul’s Story
Family Stories January 8, 2022

LHM Father’s Day 2020 – Paul’s Story

“Isobel has Mitral Atresia with Double Outlet Right Ventricle, which is a variation of Hypoplastic Left Heart Syndrome. She’s 10 and before we’ve blinked, she’ll be in secondary school. Before
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“To have any chance in life, he would have to face 3 operations” – Charlene’s Story
Family Stories January 8, 2022

“To have any chance in life, he would have to face 3 operations” – Charlene’s Story

15 years ago I was given the most difficult choice of my life. I carried my baby for 8 months and at 5 months I was told the most heart-breaking
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“Our lives were turned upside down” – Fiona’s Story
Family Stories January 8, 2022

“Our lives were turned upside down” – Fiona’s Story

In 2012 James and I were overjoyed to be expecting a baby due in April 2013 On Friday 7th December 2012 our lives were turned upside down when at our
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‘It was one of the most difficult and uncertain times in our lives’ – Daniela’s Story
Family Stories January 8, 2022

‘It was one of the most difficult and uncertain times in our lives’ – Daniela’s Story

We’ve relied on so much support from LHM over the years. LHM were crucial in the antenatal period, providing advice on what to expect at birth, in the initial operations,
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