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    It is essential when booking a holiday that you make sure that you have good travel insurance that includes repatriation (returning to the UK for a sick child and a parent). Call a variety of different insurance companies to get the best policy and price. You can try specialist companies that deal with pre-existing medical conditions, however some high street insurers can also insure people with congenital heart conditions.

    We have a list of travel insurance companies that our members have used (linked below). We cannot recommend any particular company, this is purely a guide and we must stress that you need to make sure your policy meets your needs. Even if they do not ask, make the insurance company aware of your child’s heart condition.

    Download our member-provided travel insurance list onto your smartphone here: bit.ly/2FNsFnl

    We also have a full travel insurance guide here: bit.ly/2FZZrSt     ... See MoreSee Less

    2 hours ago  ·  

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    @South Wales and South West Congenital Heart Disease Network (SWSW CHD) have recently launched their ‘my question’ campaign, in partnership with Wallace & Gromit's Grand Appeal.

    Over the next 9 weeks, they will be asking questions raised by their cardiac families, to which they will respond and “signpost to information and ideas to help you find an answer which works for your own situation.”

    Please take the time to give them a follow and get involved in the discussion, as cardiac families your input is incredibly valuable.     ... See MoreSee Less

    17 hours ago  ·  

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