Family Stories
Claire & Vinnie’s Story
Claire Holliday, from Birmingham, is mother to 4 year old Vinnie who is waiting for a heart transplant. They’ve been in and out of hospital throughout the last year. Claire
Maggie and Daniel’s Story
The pandemic and lockdown has created monumental changes for young people. Parents of young people with half a heart have been living with fear and anxiety. Those with added learning
Life For A Heart-Family In 2021 – Jen’s Story
Jen is heart-mum to Sophie who is 11 and has Hypoplastic Left Heart Syndrome. Jen talks about her experiences of lockdown as a heart-family and how their normal is different.
Heart Surgery During A National Lockdown – Max’s Story
Hello world. Max (youngest of four siblings) was born early on the 2nd of Jan 2020. He was scheduled for a planned C-Section on the 6th of Jan, but had
Our HLHS Journey and why I created an app for families like ours
Having a child is an exciting journey – and when you have your first, it’s like a great big step into the unknown. When I was pregnant with Maisie, like
LHM Father’s Day 2020 – Paul’s Story
“Isobel has Mitral Atresia with Double Outlet Right Ventricle, which is a variation of Hypoplastic Left Heart Syndrome. She’s 10 and before we’ve blinked, she’ll be in secondary school. Before
“To have any chance in life, he would have to face 3 operations” – Charlene’s Story
15 years ago I was given the most difficult choice of my life. I carried my baby for 8 months and at 5 months I was told the most heart-breaking