Family Stories
Dan’s Story
Our brave fighter Ellis, was born 10th November 2009 at just 36 weeks weighing 4lb 5oz. His cardiaccondition, Tricuspid atresia, VSD and severe pulmonary stenosis, was diagnosed during a routine20wk
“This is the reality of being a Heart Mummy” – Jade’s Story
We try to stay so strong, with a smile on our faces to make sure our little ones don’t see how much we hurt on the inside, knowing that they have
Claire & Vinnie’s Story
Claire Holliday, from Birmingham, is mother to 4 year old Vinnie who is waiting for a heart transplant. They’ve been in and out of hospital throughout the last year. Claire
Maggie and Daniel’s Story
The pandemic and lockdown has created monumental changes for young people. Parents of young people with half a heart have been living with fear and anxiety. Those with added learning difficulties
Life For A Heart-Family In 2021 – Jen’s Story
Jen is heart-mum to Sophie who is 11 and has Hypoplastic Left Heart Syndrome. Jen talks about her experiences of lockdown as a heart-family and how their normal is different.
Heart Surgery During A National Lockdown – Max’s Story
Hello world. Max (youngest of four siblings) was born early on the 2nd of Jan 2020. He was scheduled for a planned C-Section on the 6th of Jan, but had
Our HLHS Journey and why I created an app for families like ours
Having a child is an exciting journey – and when you have your first, it’s like a great big step into the unknown. When I was pregnant with Maisie, like