“His heart matters” A letter to my brother
“Burny! Burny, burny.”, I protest. You’re burning my brother!? screams silently in my 2 year old mind; as the men in white coats explain ‘it’s just a light from the monitor on
Our HLHS Journey and why I created an app for families like ours
Having a child is an exciting journey – and when you have your first, it’s like a great big step into the unknown. When I was pregnant with Maisie, like
LHM Father’s Day 2020 – Paul’s Story
“Isobel has Mitral Atresia with Double Outlet Right Ventricle, which is a variation of Hypoplastic Left Heart Syndrome. She’s 10 and before we’ve blinked, she’ll be in secondary school. Before
“To have any chance in life, he would have to face 3 operations” – Charlene’s Story
15 years ago I was given the most difficult choice of my life. I carried my baby for 8 months and at 5 months I was told the most heart-breaking
“Our lives were turned upside down” – Fiona’s Story
In 2012 James and I were overjoyed to be expecting a baby due in April 2013 On Friday 7th December 2012 our lives were turned upside down when at our
‘It was one of the most difficult and uncertain times in our lives’ – Daniela’s Story
We’ve relied on so much support from LHM over the years. LHM were crucial in the antenatal period, providing advice on what to expect at birth, in the initial operations,
“Life in 2020 remains unknown” – Maggie’s Story
Daniel’s was born in Malaysian Borneo, and rushed with a medical escort at 3 months old to Alder Hey hospital, where his life was saved. We tried to return to
‘Another Dad Said That Seeing Isobel…Had Given Them Hope’- Paul on his daughter Isobel
Sitting there cradling in the dark and peering into the unknown, I realise now we were both on the edge in those first months after Isobel was born. But being
‘I’m His Dad Not His Doctor’- David’s Story
Father’s day 2013 was a good day; a good day in a shockingly awful month. Alasdair was well enough to get to the shop at the entrance to St Thomas