Hypoplastic Left Heart Syndrome
Hypoplastic left heart syndrome (HLHS) is a rare congenital heart defect in which the left side of the heart is severely underdeveloped and incapable of supporting the systemic circulation. Please click here
Fontan-Associated Liver Disease
The Fontan procedure has gained acceptance and achieved excellent short-term outcomes, it has become evident that most post-Fontan patients develop hepatic fibrosis and even cirrhosis over time, referred to as
Children With Congenital Heart Disease 5 Times More Likely to Have a Mental Health Disorder, Study Finds
Most congenital heart defects develop in the womb and are present at birth. Certain medical conditions, medications, and genes may influence the development of heart defects. Sometimes, structural heart defects
Transforming collaborative research: a national strategy to address the JLA priorities for children and adults with CHD
A national strategy to address the James Lind Alliance priorities for children and adults with congenital heart disease In recent years, outcomes have continued to improve and nowadays around 97%
Leveraging technology for the assessment and monitoring of fragile infants with complex congenital heart disease in the community
Please only complete the below form if you have received an invitation to attend an online focus group on Tuesday 27th September 2022.
What Arts-and-Health Practices Teach Us About Participation, Re-presentation, and Risk
Via AMA Journal of Ethics Sofie Layton, MRes, Jo Wray, PhD, Victoria Walsh, PhD, and Giovanni Biglino, PhD Abstract This article explores the implications of risk in arts-and-health collaborations that
NATIONAL CONGENITAL HEART DISEASE AUDIT (NCHDA)
NATIONAL CONGENITAL HEART DISEASE AUDIT (NCHDA)2022 Summary Report (2020/21 data) Published by National Institute of Cardiovascular Outcomes Research (NICOR) Excerpt: “This report summarises selected key findings from the National Congenital
An improved congenital heart assessment tool: a quality improvement outcome
Published online by Cambridge University Press: 02 May 2022 Kerry L. Gaskin, Liz Smith and Jo Wray Background: CHD was the most prevalent congenital anomaly (60.9 per 10,000, 95% CI 59.0–62.8) in
Taking your Baby home from hospital – Research Project
Taking your baby home after their first surgery is often a scary time. Understanding what to look for and what to seek help with can be confusing. The LHM team