2025 online Open Day and AGM. 26th April from 10am to 1pm. This parent, grandparent and adults with SVH event will focus on the needs of children, young people and adults striving to get the most from their life. Please fill in your application form below – 

The National Memorial Arboretum 11th May National Memorial Arboretum, Staffordshire. Join us at a special memorial day where we remember children and adults lost to single ventricle heart disease. A chance to remember, celebrate the lives of those we have lost and  share our experiences with other families travelling similar journeys.

Help Us Shape a Fundraising Challenge! Dear Adult, LHM Members We’re cooking up something exciting for this autumn — but we need you to help make it truly special. Little Hearts Matter is inviting adult members to join us for a collaborative workshop where we’ll brainstorm and shape a fundraising challenge that you and other […]

Little Hearts Matter are thrilled to bring back the ever popular Youth Activity Weekend in 2025! The youth team cannot wait to welcome our youth members aged 12-17 at the Pioneer Centre in Kidderminster from Friday 15th  August to Sunday 17th August 2025. Here our youth members will have the opportunity to create/revisit friendships with […]

SVH Adults... Please join me, and our guest speaker Pauline Aiston (Specialist Health Psychologist), on Monday 18th August at 6pm-7pm for the ‘Mental Health and Me’ workshop. Providing a safe space for discussion, Pauline will be giving information, for educational purposes by focusing on a wide range of topics. Some may have the potential to […]

In this Jigsy does session we are going meet Amy who also has a special heart & we will get to know each other by talking about who we live with and creating a family tree.  

If you are interested in participating please scan the QR code in this letter which will lead you to the joining form.

This month our Jigzy does session will take place on the 27th September at 1pm. Amy our children’s officer is a Fontan Patient herself & will be discussing going back to school, the hot and cold weather and staying warm in the cold and energy.    Activity - Making a journal - Journal kits will […]

Led by Amy (children’s officer & Fontan patient) Activities: Halloween mask decorating, quizzes about Halloween & Bonfire Night Topic: Hospital & doctor appointments

SVH Adults ‘SVH, Sex and Pregnancy workshop’ Hi SVH adults, the topic for the upcoming workshop is ‘Sex and Pregnancy’ and will be online via Zoom, on Thursday 13th November at 4pm-5pm. Our guest speaker will be Hajar Habibi, Consultant Nurse and Lead Nurse for the ACHD service at Royal Brompton. The purpose of the […]

Have your say on what you want to see from Little Hearts Matter as 2026 approaches with the CEO and Head of Service and share ideas about the future of the organisation.   During this zoom Q&A, we plan to be discussing the following: - Report back following redundancies to staff - Initial service plans […]