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Welcome to Little Hearts Matter ❤️ We are the only national UK charity offering specialised support to anyone affected by the diagnosis of single ventricle heart condition.
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Research

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Children’s informed signified and voluntary consent to heart surgery: Professional’s Practical Perspectives
Research March 22, 2022

Children’s informed signified and voluntary consent to heart surgery: Professional’s Practical Perspectives

Little Hearts Matter’s Youth Members and Youth Leader Lexie spoke together about consent on their half a heart journey. This then contributed to a new research paper with some interesting
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Champion Study Initial Findings
Research January 7, 2022

Champion Study Initial Findings

What was the impact of the first wave of COVID-19 on the delivery of care to children and adults with congenital heart disease? A qualitative study using online forums. Click
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Research priorities in single-ventricle heart conditions: a United Kingdom national study
Research January 7, 2022

Research priorities in single-ventricle heart conditions: a United Kingdom national study

Published in 2018, the object of this project was to bring together stakeholders in the United Kingdom to establish national priorities for research in single-ventricle heart conditions. In partnership with
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25th Anniversary Membership Survey – Creating a Better Future
Research January 7, 2022

25th Anniversary Membership Survey – Creating a Better Future

Back in 2019, in its 25th Anniversary year, Little Hearts Matter sought to review how the needs of its membership may have changed over the past 25 years and where their
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NIHR – Heart surgery in young children
Research January 7, 2022

NIHR – Heart surgery in young children

Heart surgery in young children: routine monitoring of complications can help assess the quality of care. Written by friend of LHM, Kate Brown, for the National Institute for Health Research,
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Children’s and Parents’ Consent to Heart Surgery – University College London
Research January 7, 2022

Children’s and Parents’ Consent to Heart Surgery – University College London

Children’s and Parents’ Consent to Heart Surgery Research project 2019-2021, September 2021 Thank you very much to everyone who helped with our research from Priscilla, Rosa and Katy at University
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BCCA COVID-19 Infection In Congenital Heart Disease Study
Research March 25, 2021

BCCA COVID-19 Infection In Congenital Heart Disease Study

BCCA COVID-19 infection in Congenital Heart Disease study
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The History Of Treatments For Single Ventricle Heart Conditions
Research March 13, 2021

The History Of Treatments For Single Ventricle Heart Conditions

Suzie Hutchinson asked me to write about the early history of treatments for single ventricle over the years; she chose me to write this because I am old! I started
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COVID-19 and Congenital Heart Disease – Italian Research Paper
Research August 26, 2020

COVID-19 and Congenital Heart Disease – Italian Research Paper

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Leg pains in Congenital Heart Disease: A distressing symptom of a wider problem
Research August 13, 2020

Leg pains in Congenital Heart Disease: A distressing symptom of a wider problem

To read the full report please click here. For many years parents have contacted us about pains that their children have in their legs, especially after a long day of
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