In June 2013 a new benefit called the Personal Independence Payment (PIP) was introduced to help with some of the extra costs caused by long-term ill-health or disability.
Adults aged 16 to 64 living with a single ventricle heart condition should apply for this new benefit, which replaces Disability Living Allowance (DLA). At age 16 the application is being made for an adult so the allowance is paid to the young person. However you can nominate someone to help you complete the application form and the allowance can be paid to someone else if you give permission.
It is a good idea for young adults to start to take an active role in the application process, if they are able to, because they need to gradually take on more responsibility for their own condition and lifestyle restrictions. This benefit, and other benefits, are part and parcel of achieving as much independent living as possible.
The following facts and tips have been written to help young adults and their parents/carers as they negotiate the process of applying for PIP. You can also download a sample PIP form here. The aim of this information and the support services available from the Little Hearts Matter team will be to improve adults’ access to Personal Independence Payment support enabling them to achieve as independent an adulthood as possible.