Neurodevelopmental and Mental Health Outcomes in Patients With Fontan Circulation: A State-of-the-Art Review
Neurodevelopmental and Mental Health Outcomes in Patients With Fontan Circulation: A State-of-the-Art Review Children, adolescents and adults living with Fontan circulation face numerous neurological and developmental challenges. Many patients with
Psychiatric Disorders in Adolescents With Single Ventricle Congenital Heart Disease
Psychiatric Disorders in Adolescents With Single Ventricle Congenital Heart Disease The authors of this research article examined psychiatric disorders and psychosocial functioning in adolescents with single ventricle CHD and to
Immunisations
Children with Half a Working Heart are just as susceptible as other children to catching infections but their heart condition may mean that they take a great deal longer to
What does good care look like to people living with congenital heart disease in the 21st century? Qualitative online, asynchronous discussion forums
The aim of this article was to elicit perspectives of people with congenital heart disease (CHD) and/or their parents/carers about their experiences of healthcare and what is important to them
Children’s informed signified and voluntary consent to heart surgery: Professionals’ practical perspectives
This literature discusses children’s consent generally assume that patients aged under-18 cannot consent until around 12 years, and cannot refuse recommended surgery. Children deemed pre-competent do not have automatic rights
30 Years On
by Suzie Hutchinson The diagnosis of a single ventricle heart condition, in an unborn baby, leaves families feeling frightened, isolated and confused. This was true of parents who
New Film Raises Awareness for Children Born with ‘Half a Heart’
Little Hearts Matter, the only charity in the UK and Ireland dedicated to supporting and empowering anyone affected by the diagnosis of a single ventricle heart condition (or “half a
Mother’s Love in Action: Laura’s Inspired Journey of Empathy and Endurance to Raise Funds for Little Hearts Matter
In an extraordinary display of love and determination, LHM Parent Member, Laura Cwiklinski, a devoted mum of two from Cheshire, is taking on a ‘Big Six’ series of endurance challenges
DLA & PIP survey results
Please click here to read the results collected from our DLA and PIP survey.