Welcome to the information pages, learning that a child has only half a working heart is devastating for parents and families.

At the beginning of the half a heart journey it can be difficult to fully understand all the information you are being given. Here at Little Hearts Matter we aim to help families understand more about the heart, heart conditions and their treatments and gain a greater understanding of the day-to-day challenges a child and young adult faces living with half a working heart.

Be social with us - our latest tweets and posts

    Hope 🌈

    "Hello! This is my first time posting since recently joining this group. Here’s my favourite lock-down picture of my son Toby (Complex Pulmonary Atresia), he’s just over 2 years old."

    "We’ve been shielding and now very nervously trying to get back to some normality...for Toby and his 5 year old sister."

    Quote shared by LHM parent member Carlie x
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    2 days ago  ·  

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    Reaching Milestones in Lockdown | Elijah's Fontan Progress

    An update from LHM parent member Michelle, mum to Elijah who had his Fontan operation 2 years ago...

    "Hard to believe this was 2 years ago, and then a pic of him now! 😍 We couldn’t have got through our journey so far without the amazing support from the NHS and the LHM team. We will always be thankful."

    Half a Heart, Not Half a Life x
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    2 days ago  ·  

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