Thanks so much to everyone who filled in our survey. We could not have done it without you! Here you can find the feedback results from our survey and what the results mean. Thank you once again.
Click here to go onto our awareness page where you check out our custom photo frame is a simple, yet personalised way to share your support of the LHM Awareness Week with your community.
Click here to view our latest news press about our nationwide survey results as we are on our journey on making sure that anyone with half a heart is recognised in the DLA & PIP application process.
Click here to read our assessor information pack for Personal Independence Payment for young adults with a single ventricle heart condition.
Click here to read our submission for the assessor info pack for Disability Living Allowance for children and teenagers with a single ventricle heart condition.
Click here to read our submission for the assessor info pack for Personal Independence Payment for young adults with a single ventricle heart condition.
Here's the responses so far from both Minister and Shadow Minister for Disability, Mims Davies & Vicky Foxcroft.
Read the Independent Living article on 'Incurable heart conditions – but no disability benefits' written by Emma Pelling.
Click here to read the response letter from the former Shadow Minister for Disability from our new information on single ventricle conditions pack for assessors.
