Imaan’s Story

At her twenty week scan Ferdie received the devastating diagnosis that her daughter had an incurable heart condition.

Ferdie is a trained medical clinician and works as a Dentist so she instantly understood the medical jargon and knew how serious her daughter’s condition was.

She was give three options; terminate the pregnancy, go to full-term and allow her baby to die naturally with no intervention  or have a series of palliative high risk open heart surgeries starting soon after birth.

Imaan is now 14yrs and has undergone a series of three open-heart surgeries – the first within a few days of being born, the second at seven months old which was also on the day of her first Eid and the final surgery took place when she was 5yrs.

In the early years Imaan was in and out of hospital but today she faces a range of different challenges as a teenager with half a functioning heart.

Imaan is determined to live a full life as possible and is keen to raise awareness of the issues she faces.  Ferdie says her biggest challenge is not being understood.  Ferdie has had to fight for her daughter every step of the way. Imaan looks no different to other teens her age but she is living with one of the most serious heart conditions that exist.

Imaan began her journey with the Little Hearts Matter youth services. Since then she has joined in with youth residential events, written her story for their website and newsletter as well as coming into the offices to not only be the voice of up and coming youth animation but to record footage to support Facebook campaigns. Imaan has shared her goals of becoming a journalist.

By sharing her story and the struggles Imaan faces she helps others either feel less isolated or learn more about life with a single ventricle heart condition.  This month she was awarded the Little Hearts Matter Brave Hearts Ambassadorial Award.

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    Tonight's episode of 'My Life' on CBBC follows the amazing story of LHM youth member Jack, tune in at 5:30 PM ❤️

    'My New Heart' follows Jack's inspiring journey through living with half a working heart, his transplant and life post transplant. This is a moving documentary we were privileged to help out with and thankful to be credited at the end to help spread awareness of life with a single ventricle heart.

    'My Life - My New Heart' premieres on CBBC tonight, Tuesday 18th at 5:30 PM.
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    3 hours ago  ·  

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    Social Media Support

    Single ventricle conditions are so rare that many of our families do not know anyone else locally who is facing the same challenges. Through our private social media groups and the LHM newsletter, we are able to link our members with other heart families across the UK.

    This gives them a chance to keep up to date with the charity and connect with other parents going through similar experiences. We also offer one-to-one chat support through Facebook messenger, we always have an ear to listen and we’d love to hear from you ❤️

    Click here to explore our private Facebook groups for LHM members
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