Imaan’s Story

At her twenty week scan Ferdie received the devastating diagnosis that her daughter had an incurable heart condition.

Ferdie is a trained medical clinician and works as a Dentist so she instantly understood the medical jargon and knew how serious her daughter’s condition was.

She was give three options; terminate the pregnancy, go to full-term and allow her baby to die naturally with no intervention  or have a series of palliative high risk open heart surgeries starting soon after birth.

Imaan is now 14yrs and has undergone a series of three open-heart surgeries – the first within a few days of being born, the second at seven months old which was also on the day of her first Eid and the final surgery took place when she was 5yrs.

In the early years Imaan was in and out of hospital but today she faces a range of different challenges as a teenager with half a functioning heart.

Imaan is determined to live a full life as possible and is keen to raise awareness of the issues she faces.  Ferdie says her biggest challenge is not being understood.  Ferdie has had to fight for her daughter every step of the way. Imaan looks no different to other teens her age but she is living with one of the most serious heart conditions that exist.

Imaan began her journey with the Little Hearts Matter youth services. Since then she has joined in with youth residential events, written her story for their website and newsletter as well as coming into the offices to not only be the voice of up and coming youth animation but to record footage to support Facebook campaigns. Imaan has shared her goals of becoming a journalist.

By sharing her story and the struggles Imaan faces she helps others either feel less isolated or learn more about life with a single ventricle heart condition.  This month she was awarded the Little Hearts Matter Brave Hearts Ambassadorial Award.

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    “Thank you very much for Chris' card. I cannot believe he is 18 and am so proud of the lovely young man he has become, overcoming the many challenges we have faced over the years, especially in the first 4 to 5 years. Thank you Little hearts matter for always being there.”

    Thank you to Chris and mum Philippa for sharing this fantastic news with us, we hope this brings some inspiration to the many families out there who are at the start of their half a heart journey.

    With YOUR help, we can continue to support the amazing young adults living with a single ventricle heart today, just like Chris here. All you need to do spare 30 seconds of your time every day to vote for LHM in Persimmon’s ‘Building Futures’ initiative.

    They don’t ask for any details, you simply click our logo on this page; biy.ly/support-lhm

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    So pleased to see Amelia here, DILV, enjoying some cycling along with her sister Evie…

    “We’ve been doing a lot of cycling this week as both girls have grown in confidence. I’m amazed at Amelia’s stamina on the bike, doing much more exercise than she’s ever done. This is the girl that needs a buggy to get home from school (in normal life). She’s found a sport that she can comfortably do. She says she feels free when she’s cycling. That makes me happy and sad at the same time ❤ “Cycling makes me feel free, happy and like nothing is in my way””

    Riding a bike is great exercise for children, teenagers and adults with half a working heart. It helps get you from A to B but is also is supported exercise for the lower body and therefore provides good support for blood returning to the lungs. There are many incentives to help get you on a bike, at the moment.

    Learn more by jumping to our ‘get fit for winter’ resource here: www.lhm.org.uk/information/lifestyle-information/get-fit-for-winter/
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