Little Hearts Matter has members spread throughout the UK and Ireland. Every year the LHM Roadshow travels out around the regions to visit the main hospitals and to meet members closer to home.

In some areas we have parent volunteers who provide a link locally for member families. We are hoping to build this service over the next year so watch this space for more information after the summer. In the meantime if you are looking for other parents to link with nearer to home give the LHM team a buzz and we will look for other local families.

 

 

 

Be social with us - our latest tweets and posts

    Most children born with a single ventricle heart undergo a series of open heart surgeries from a very early age. In our eyes, they are all champions in their own special way.

    The medical experiences of these families is now being researched by a team of NHS specialists, with an aim to shape the future of patient experience for children affected by congenital heart disease.

    We have collaborated with the NHS to take part in this special and incredibly important research project. It is called Champion and is open to members of Little Hearts Matter – parents, adults and teenagers.

    We urge you to join the study, it is so important to our community and will help to drive real positive changes. All you have to do is answer a few questions. Please complete an application form and you will be contacted by LHM with more info.

    Here is the application form 👉 bit.ly/35KLG7n

    Photo of Acer, TGA, and VSD, kindly shared by parent member Katie, thank you.
    ... See MoreSee Less

    9 hours ago  ·  

    View on Facebook

    If you didn't snap it 📸 it didn't snow 😉

    Great to see so many of our young members getting out and enjoying some fun in the snow! ☃️

    Keeping hands, feet and noses warm when you only have half a heart can be a challenge, so please remember we have our winter warmers information, linked below 👇

    bit.ly/2YeuItK

    Half a heart, not half a life ❤
    ... See MoreSee Less

    24 hours ago  ·  

    View on Facebook