Antenatal support – 0121 455 8982

Many families first find Little Hearts Matter just after they have learnt that their unborn baby has half a working heart.

The Little Hearts Matter team are here to help make any diagnosis and treatment information easier to understand and will always try to help new families cope with the emotional choices needed during pregnancy. Following a call to the support line you will be linked with a member of the antenatal support team.

Click here if you would like to read our antenatal information and antenatal family stories.

Meet the antenatal support team.

Suzie Hutchinson, Office team support

Suzie has been working for the charity for 17 years. She used to be a Congenital Cardiac Specialist Nurse so will listen to all callers’ concerns and work to help them understand what their medical team have told them, especially following a new diagnosis or treatment plan. Although she is unable to give individual medical advice she will help a caller to draw up a list of questions for their own medical team. She also works to help families to access support for a child in school or apply for benefits and she works to give a general overview of life with a congenital heart condition and the support a child or family may need at any stage of their journey.

Rachel Robinson, Parent volunteer

I have been married to Adrian for 15 years, we have 4 children and live and work on our family farm in South Shropshire. I had an antenatal diagnosis of HLHS with my 3rd child, Samuel, who was born in 2006 at the Birmingham Women’s Hospital. Samuel has undergone all three stages of surgery at Birmingham Children’s Hospital and has since had a pacemaker. I have done some fundraising for LHM over the last few years and 3 years ago I became a parent support volunteer. I clearly remember how desperate and confused we were by the initial diagnosis and what a lifeline LHM was to me. LHM has continued to support us over the years and I am glad to be able to support other newly diagnosed mums and dads who find themselves in a similar position to the one we were in 10 years ago.

Lynne Carney, Parent volunteer

Lynne Carney is a mother to three. Her middle child Carys, now aged 19, was born with a single ventricle heart following an antenatal diagnosis. Lynn is able to offer other parents a listening ear and years of experience of facing the challenges that having a child with a one pump heart can bring.

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    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    18 hours ago  ·  

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

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