Antenatal support – 0121 455 8982

Many families first find Little Hearts Matter just after they have learnt that their unborn baby has half a working heart.

The Little Hearts Matter team are here to help make any diagnosis and treatment information easier to understand and will always try to help new families cope with the emotional choices needed during pregnancy. Following a call to the support line you will be linked with a member of the antenatal support team.

Click here if you would like to read our antenatal information and antenatal family stories.

Meet the antenatal support team.

Suzie Hutchinson, Office team support

Suzie has been working for the charity for 17 years. She used to be a Congenital Cardiac Specialist Nurse so will listen to all callers’ concerns and work to help them understand what their medical team have told them, especially following a new diagnosis or treatment plan. Although she is unable to give individual medical advice she will help a caller to draw up a list of questions for their own medical team. She also works to help families to access support for a child in school or apply for benefits and she works to give a general overview of life with a congenital heart condition and the support a child or family may need at any stage of their journey.

Rachel Robinson, Parent volunteer

I have been married to Adrian for 15 years, we have 4 children and live and work on our family farm in South Shropshire. I had an antenatal diagnosis of HLHS with my 3rd child, Samuel, who was born in 2006 at the Birmingham Women’s Hospital. Samuel has undergone all three stages of surgery at Birmingham Children’s Hospital and has since had a pacemaker. I have done some fundraising for LHM over the last few years and 3 years ago I became a parent support volunteer. I clearly remember how desperate and confused we were by the initial diagnosis and what a lifeline LHM was to me. LHM has continued to support us over the years and I am glad to be able to support other newly diagnosed mums and dads who find themselves in a similar position to the one we were in 10 years ago.

Lynne Carney, Parent volunteer

Lynne Carney is a mother to three. Her middle child Carys, now aged 19, was born with a single ventricle heart following an antenatal diagnosis. Lynn is able to offer other parents a listening ear and years of experience of facing the challenges that having a child with a one pump heart can bring.

Be social with us - our latest tweets and posts

    Nominations are open for our next Brave Hearts Awards 🏅

    We know that a lot of our young people miss out on awards and trips at school and we feel that they, like every young person should be rewarded for what they learn and how they develop 🙌

    If you know of a young person with a single ventricle heart aged between 8-17 that has achieved and grown, take a look at our list of awards on www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/ 👈

    Nominations will close at the end of January 2020 📅
    ... See MoreSee Less

    8 hours ago  ·  

    View on Facebook

    👋 Meet Archie, he is 7 years old and was born with Tricuspid Atresia (TA) a rare congenital heart condition. Archie had his Fontan procedure in September at the University Hospital Southampton, Ocean Ward. The aim of the Fontan procedure is to give a child as much energy as having only half a pumping heart will allow. If surgery has gone to plan the children will gradually recover from the operation and go on to gain far more energy than they had before. He had a longer stay than anticipated, due to a number of complications, but was discharged in October.

    ❤️ “The staff, nurses, doctors, consultants and surgeon were utterly wonderful and we can’t thank them enough. However, it was a consultant anaesthetist, Dr Andy Curry, who stood out in Archie’s mind. His bedside manner, and the relationship of trust that he managed to build up with our very anxious little boy, was astounding to watch. So, on ‘Dress as your Hero Day’ at school, Archie wanted to dress as his hero…”I want to dress as Dr Andy because he helped save my life and he’s my friend”…gulp” – Archie’s mum Charlene.

    😻 We have been blown away by this story. A month after coming home from hospital and Archie is raising a smile, dressing up as his hero and on his way to school. This is one strong boy, as are all of the children in the LHM family.

    🙌 Give this post a share to show your support of Children’s day.

    #ChildrensDay
    University Hospital Southampton NHS Foundation Trust
    ... See MoreSee Less

    1 day ago  ·  

    View on Facebook