NHS to notify heart surgery patients of small risk of infection caused by heater cooler units

The NHS is today (Tuesday 21st March) taking the precautionary step of writing to patients who have had certain types of open heart surgery to inform them that they may have a  low risk of having contracted an infection caused by Mycobacterium chimaera (M. chimaera). Over the next two weeks, letters are being sent to patients in England, Scotland, Northern Ireland and Wales who have … Continued

Mortgage Bureau raises £15,000 for LHM

Mortgage Bureau, a mortgage firm based in Wolverhampton has raised a total of £15,000 for heart charity Little Hearts Matter over the last year. The great team have participated in marathons and bake sales to raise cash for kids with half a heart and also spent the year donating £1 to LHM from every mortgage … Continued

Small heart charity gives Birmingham bull a heartfelt makeover

Visitors to Birmingham’s Bullring shopping centre this weekend will notice the iconic bull statue donning a new heart-themed outfit in a bid to raise awareness of children with half a working heart. Little Hearts Matter (LHM), a small charity that supports families when their child has only half a working heart, is currently the Bullring … Continued

British Medical Association raise a hearty amount for small charity

The British Medical Association (BMA) has been busy raising money for children with half a working heart. The association that supports doctors to deliver high quality services raised a total of £13,714.48 over the last year for Little Hearts Matter. Little Hearts Matter is a small charity that supports families when their child has half … Continued

Brave children address House of Lords event about living their lives with just half a working heart

Seven children, all born with half a working heart, kicked off a countrywide awareness campaign to help others living with the same condition with a special reception at the House of Lords on Tuesday 14 February. The event, which coincided with Congenital Heart Defect Awareness Day, was hosted by Little Hearts Matter, the only charity … Continued

Maxim Lifting Services splashes heart charity logo on its vehicles

A leading UK lifting service provider, which provides contract lifting, plant and equipment hire, has partnered with small heart charity Little Hearts Matter (LHM) to help raise awareness of life with only half a working heart. Maxim Lifting Services has placed the charity’s logo on its vehicles and website. The lifting services provider will also … Continued

NHS England’s Congenital Cardiac Consultation

We would just like to remind you to take part in the  NHS England congenital cardiac consultation. Having agreed a new set of Standards, which aim to raise the standards of treatment and care across the country,  NHS England have suggested some changes to the service to ensure that the new Standards can be met. … Continued

Children’s Heart Study

The Great Ormond Street team have sent through some detail on their progress with a new study that they are conducting in partnership with many of the other centers on the impact of cardiac surgery. We thoughts that you might like to see their recent patient and parent newsletter. Children’s Heart Study Newsletter Issue 2_FINAL

News from the Department of Work and Pensions.

Many of you know that a number of congenital cardiac charities have been working together to get the Department of Work and Pensions to re-introduce information on childhood heart disease in the DLA assessors guidance. Today we have had a letter from the DWP to say that the information will be introduced in February/March, in … Continued

Keeping children’s heart services safe.

It is always so sad to hear that any child has received poor treatment or care whilst in hospital, or from a community medical team. With advancements in treatment, complex though that treatment is, poor care should never be seen.  Issues around failures in the surgery offered by one surgeon at Leeds Royal Infirmary have … Continued