Response to NHS England’s decision about the future of congenital and children’s heart services in England

  Over the last twenty years the care and treatment of children and adults with congenital heart disease has been repeatedly discussed, reviewed and assessed. This relentless scrutiny, with no confirmed forward plan, has left the service underfunded and lacking the energy needed for the ambition that will allow for growth or the advancement of … Continued

Developing and testing evidence based patient information on outcomes for families affected by Hypoplastic Left Heart Syndrome

Little Hearts Matter have joined with the Great Ormond Street Hospital Team to help them look at ways to improve their understanding of the outcomes from surgery but most importantly how that information is communicated to families. We are looking for families affected by hypoplastic left heart syndrome to help us with a ‘quality improvement … Continued

The Bi Annual Little Hearts Matter Survey

Dear Little Hearts Matter Members Little Hearts Matter relies on the thoughts, comments and ideas of our members to: Forward the single ventricle heart voice in arenas for change. Gain a collective view on areas of member concern. Gain the care, information and support priorities of the membership. Plan support and information services. Gain ideas … Continued

Great British Sewing Bee contestant creates exclusive tutorial for Little Hearts Matter

Angeline Murphy, a Great British Sewing Bee contestant in 2016, has produced an exclusive tutorial for the heart charity Little Hearts Matter (LHM) for their Handmade Hearts fundraiser. Little Hearts Matter is a small national UK charity that supports families when their baby is diagnosed with half a working heart. The charity’s Handmade Hearts fundraiser … Continued

Creation Station comes to the Little Hearts Matter office

Last week, Emma from Creation Station came into the LHM office to do a Handmade Hearts craft session with our young heart warriors. They got involved in making their own heart shaped door signs, got messy with painting a large handmade heart and made their own heart shaped keyrings. This October, Little Hearts Matter will … Continued

We heart LHM

Over the next months we will be inviting potential supporters into the Little Hearts Matter office. We want to present the work that we do and the needs of you, our members, in a bright and energetic way. As you can see currently our conference room display board is empty. Can you help us fill … Continued

Tick the Box for LHM Contact

Over the next month the LHM team will be contacting members directly, by post or email, to update them on new rules set by the Charity Commission on how charities can contact their members. We will be asking  our members to give us permission to use their email or full address to keep them up … Continued

Easter Bunny Competition.

Little Hearts Matter has a great new competition for all our families to enter over the Easter holidays.  Mums and Dads, Grandmas and Grandpas can join up with the children to seek out six Easter Bunnies hidden within the pages of our Website. There are clues and tips on where to search them out and … Continued

NHS to notify heart surgery patients of small risk of infection caused by heater cooler units

The NHS is today (Tuesday 21st March) taking the precautionary step of writing to patients who have had certain types of open heart surgery to inform them that they may have a  low risk of having contracted an infection caused by Mycobacterium chimaera (M. chimaera). Over the next two weeks, letters are being sent to patients in England, Scotland, Northern Ireland and Wales who have … Continued

Mortgage Bureau raises £15,000 for LHM

Mortgage Bureau, a mortgage firm based in Wolverhampton has raised a total of £15,000 for heart charity Little Hearts Matter over the last year. The great team have participated in marathons and bake sales to raise cash for kids with half a heart and also spent the year donating £1 to LHM from every mortgage … Continued

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