Little Hearts Matter’s Storytelling Project Media consent form

Important Information Before You Decide to Take Part

Sharing your family's story can be a powerful and positive experience that helps 5 other families feel less alone and raises awareness of single ventricle heart conditions and the work of Little Hearts Matter.

However, we recognise that discussing your experiences may involve revisiting difficult memories and emotions. Depending on your circumstances, you may be asked to talk about:

• Pregnancy and antenatal diagnosis
• Hospital admissions and surgeries
• Medical trauma and uncertainty
• Family challenges and emotional wellbeing
• Loss, grief and bereavement (where applicable)
• Ongoing care and future concerns

Some participants may find these conversations upsetting, emotional or triggering, particularly if the events are recent or if they are still navigating aspects of their journey.

Before agreeing to participate, please consider whether:

• You feel emotionally comfortable discussing your experiences in detail.
• You understand that parts of your story may be shared publicly through Little Hearts Matter's communications and storytelling activities.
• You are comfortable with others outside your immediate family or support network hearing, viewing or reading aspects of your experience.
• You understand that your interview may be edited, but the aim is to share an honest, factual and relatable account of your journey.

Participation is entirely voluntary. You may pause, take a break, decline to answer any question or stop the interview at any time without explanation.

If you are currently experiencing significant emotional distress or feel that revisiting your experiences may negatively affect your wellbeing, you may wish to consider whether now is the right time to participate.