Siblings

Having a brother or sister with half a working heart can be tough, but you’re in the right place for support.

Being a sibling (brother or sister) of someone with a single ventricle heart condition can be really hard. Like any sibling relationship, there will be things around fairness, competition, reliability, and enjoying time together. However, when your sibling has a single ventricle heart condition, these feelings can be much more intense. You might feel like you want to have a “normal” life, but you might also want your brother or sister to get the right sort of support so they can have a “normal” life too.

As a sibling, you play a big and important role in the life of your brother or sister. Not only will you play a part in their social life, but you’ll probably also help your parents look after them, speak up for them, and help them learn and grow.

You can join our Zipper Chat which is a special forum just for our young members (this includes you!) so you can chat to other siblings about what life is like for you.

Why not check out Sibs, a charity for brothers and sisters of disabled children and adults, where there’s lots of information and support specifically for siblings like you?

When you are younger yes you might feel jealous—I was at some points because I thought that Ella was getting all of the attention but as I grew older, I realised that it is about all of us and there is no point in being jealous because she needs more help than the average person and that makes her special. – Chloe, 17, Sibling

 

 

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    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    18 hours ago  ·  

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

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