Youth booklets

We’ve written various information booklets for you to help you understand your heart condition as well as about different areas of your life that you might need a bit more information on such as making career plans, relationships, and education support.

Living with anticoagulation

This booklet is to help you understand why anticoagulation is needed, how to manage it on a day-to-day basis, and what the potential risks are.

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Sports and exercise

This booklet was written for parents, but it will also be useful for you. It gives overall guidance for leisure and school sports and exercise, and includes a chart which can be used to give an up-to-date personalised picture of what is safe for you.

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Travel and trips

If you’re going away on holiday, for the weekend, or even going away for without your parents, this booklet will help you to plan what you need to do to make sure you have a great time and stay safe.

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Information filofax

This is a plastic filofax which contains information on single ventricle heart conditions, possible treatments and lifestyle information. This can be added to as the charity produces more information.

Download

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    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    18 hours ago  ·  

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

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