What can you do?

Zippers can get involved with us in lots of different ways.This website allows you to meet new people, pass on your experiences and find out what other opportunities we offer throughout the year. Your voice matters to us at Little Hearts Matter so we want you be involved as much as possible!

Open Day

Little Hearts Matter open days are a time for all our Zippers and their families to come together from all over the country and take part in some of our amazing workshops. These involve information on first aid, your heart and body image, all while including some fun and games, not to mention the pizza and film evening event. There will also be a space for our 16+ members to meet and have a chat, away from the workshop sessions. This is a great chance for you to meet new people and share stories with other Zipper’s just like you!


When you become a Zipper you will receive our newsletter. In our newsletter for the 8-13 age group there will be other Zipper stories and information on our upcoming events. Our 14-18 age group will receive a bigger newsletter including articles about living with half a heart and also more stories from our Zippers. All of our newsletters will also give you the opportunity to be involved with some of our competitions and games!


For our Zippers aged 13+, you will have access to our private Facebook page. This will give you the opportunity to share any stories or ask other Zippers any questions. Make sure you keep up to date with this page as there will be quizzes and games that you can be involved with, along with sharing your ideas to help Little Hearts Matter.

Activity events

Throughout the year Little Hearts Matter hold different events that you can be part of.  If you take on the challenge, you could be taking part in one of our activity weekends where you can be experiencing canoeing or abseiling. We also hold events like our recent filming event, where our Zippers managed and produced a professional film telling their half a heart journey. Each event you get involved with means meeting new people and being involved with some fun and exciting new experiences, so keep a look out for the next one!

Regional events

We also hold regional events that enable you to meet other Zippers that are near by and get some more information about your heart. Keep up to date on where we are of to next so you can come and meet us and the other Zippers!

Coming Soon...

Here at LHM we are planning new and exciting things for our zippers to experience and be a part of. Keep an eye out as in the future we hope to;

  Create a zippers instagram.

  Job Fare Visits

 Future Filming Opportunities

We hope you are as excited as we are, if you have any more ideas for the future don’t hesitate to contact Lexie.

Be social with us - our latest tweets and posts

    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    18 hours ago  ·  

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

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