Youth newsletter

Here you can find copies of all the most recent newsletters.

Please remember that these are the enhanced versions of the newsletter aimed at our 14+ members, so if you’re under 14 there might be some information that you don’t understand or might find upsetting.

If you’d like to put something in the youth newsletter, or to discuss anything that you’ve read in a newsletter, you can contact Youth Leader Lexie.

Issue 32

Read about what youth events we have coming up in 2018 and FAQs for sports and Exercise changes in the single ventricle community.


Issue 31

Read about our recent youth events and meet Thomas as he tells you his story so far.


Issue 29

Find out about our youth reader panel, as well as read the final part of our mental health focus articles.


Issue 28

Read young member Lucy’s (Tricuspid Atresia, 11) story, and read part 3 of our mental health series.


Issue 27

Find out about your heart and how it beats, as well as reading the second part of our series on mental health.


Issue 26

Hear from young member Colbie-Kate (Pulmonary Atresia, 12) who wrote a lovely story about why it’s important to celebrate who you are as a young person with a single ventricle heart condition, read the first part of our mental health series, as well as an article on why sleep is important.


Issue 25

Read Chloe’s (17) story about life as a sibling, how to stay safe in the sun, why you should be careful when it comes to tattoos and piercings, and drinking alcohol when you have a single ventricle heart condition.


Issue 24

Read Dillon’s (HLHS, 10) story about his heart journey, tips for staying warm in the winter, heart journey’s from a number of our older members, and staying safe online.


Issue 23

Read about some of your questions answered, get fundraising ideas, learn about Handmade Hearts, hear an update from the Youth Council, as well as some craft ideas.


Issue 22

Read a story from young member Andrew (HLHS, 17), find out about the Youth Council, tattoos and piercings when you have half a heart, and drinking with your heart condition.


Issue 21

Read an article from Suzie about the importance of respecting your heart.


Issue 20

Find out about Endocarditis, hear Nadine’s (HRHS, 25) heart story, get an update from the Youth Council Chairperson, Carys, check out apps that could help you manage your heart condition, and learn about 20 Years of LHM


Issue 19

Matthew talks about his first experience of a stress test, Hannah (TGA & DIOLV, 18) talks about her first year at Uni, Find out how to keep up to date with what’s happening via
our social media networks, Hear from our Youth Council Chairperson, Carys, about how to get involved, and Youth Project Leader Jon says a final farewell and your new Leader Olivia says Hello!


Issue 18

Hear from young member Molly (16) about her life story, from before she was born to right now, find out more about The Somerville Foundation and how to get involved.


Issue 17

Read a few stories of what people got up to at the Open Day, as well as from Olivia on what it’s like to have a brother with half a heart.


Issue 16

Featured in this issue: Safe and sustainable.

Issue 15

Featured in this issue: House of Commons visit.

Issue 12

Featured in this issue: Media skills write up, Open Day story.

Issue 11

Featured in this issue: School stories.

Issue 10

Featured in this issue: Sports and exercise, information on univentricular hearts.

Issue 9

Featured in this issue: Updates from the Youth Council, information about your heart condition, our Ask Caroline section, plus plenty of jokes and riddles.

Issue 8

Featured in this issue: Lots of exciting info about how to get involved with the Zipper Zone website, how our young members have been helping the charity by fundraising for us and our Ask Caroline section, plus plenty of jokes and riddles.

Issue 7

Featured in this issue: Details of the teenage get together on 6th September 2009 (for all members aged 10+ and their siblings – no parents allowed!), Inspirational Story – volunteer Caroline talks about living with her heart condition – pulmonary and tricuspid atresia and her life so far, the Youth Council meeting report, plus the usual news, jokes and riddles.

Issue 6

Featured in this issue: A full write up of the 2009 Activity weekend with lots of photos and stuff by the people who were there, plus a film review and the usual jokes and riddles.


Issue 5

Featured in this issue: Details of ‘Over the Wall’ breaks, the winner of the Youth Council logo competition, meet the Youth Council, plus the usual news, jokes and riddles.

Issue 4

Featured in this issue: A write up of the 2009 Open Day, a medical article explaining what Hypoplastic Left Heart syndrome is so that young people can understand their condition (a great article to help adults understand too!), a recipe for a delicious microwave cake, plus news and riddles too.

Issue 3

Featured in this issue: Lots of news, a book review and an opportunity to find out about what all the LHM staff do.

Issue 2

Featured in this issue: Learn about what the heart does and why it is important

Issue 1

Featured in this issue: Info on our 2008 Shugborough run and reviews of books, DVDs and games.


Be social with us - our latest tweets and posts

    “Esmé has Hypoplastic Left Heart Syndrome and underwent a bilateral CAVO operation recently at Alder Hey Hospital. This video was just 4 days post-operation, showing how happy she is! Esmé is receiving just a flow to support breathing with no oxygen requirement.”

    “Being in hospital having surgery at this difficult time is hard but we’re thankful that extra measures have been put into place to protect her including a room of her own whilst she recovers and gets fit enough to go home and isolate 💕 “
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