Siblings

Having a brother or sister with half a working heart can be tough, but you’re in the right place for support.

Being a sibling (brother or sister) of someone with a single ventricle heart condition can be really hard. Like any sibling relationship, there will be things around fairness, competition, reliability, and enjoying time together. However, when your sibling has a single ventricle heart condition, these feelings can be much more intense. You might feel like you want to have a “normal” life, but you might also want your brother or sister to get the right sort of support so they can have a “normal” life too.

As a sibling, you play a big and important role in the life of your brother or sister. Not only will you play a part in their social life, but you’ll probably also help your parents look after them, speak up for them, and help them learn and grow.

You can join our Zipper Chat which is a special forum just for our young members (this includes you!) so you can chat to other siblings about what life is like for you.

Why not check out Sibs, a charity for brothers and sisters of disabled children and adults, where there’s lots of information and support specifically for siblings like you?

When you are younger yes you might feel jealous—I was at some points because I thought that Ella was getting all of the attention but as I grew older, I realised that it is about all of us and there is no point in being jealous because she needs more help than the average person and that makes her special. – Chloe, 17, Sibling

 

 

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    2 weeks on from our initial release of the ‘Wrap a Blanket’ video and we have reached over twenty five thousand people so far. An incredible amount of awareness has been raised. We have also filled our first blanket on the Visufund page, thank you so much to everyone for making this happen!

    But to support every heart-family, we are going to need to fill even more blankets. We are confident in you, our generous supporters, to help us reach our goal of filling 3 blankets by Christmas.

    Click here to purchase a patch and support children born with half a heart this Christmas: visufund.co.uk/lhm-wrap-a-blanket-2

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    4 hours ago  ·  

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    In 2020, as many as 550 new families will receive the life changing news that their baby has only half a working heart. They will all feel frightened, isolated and overwhelmed with new information.

    Help us to support them with this devastating news and to feel part of the LHM family. The half-a-heart journey truly is a rollercoaster, but we are here for these incredibly brave families every step of the way.

    To be able to support all of the heart-families out there, we need your generosity this Christmas.

    So please, make a donation to our Visufund page by clicking here: visufund.co.uk/lhm-wrap-a-blanket-2,

    Don’t forget that every share counts, thank you ❤
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    22 hours ago  ·  

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