Having a brother or sister with half a working heart can be tough, but you’re in the right place for support.
Being a sibling (brother or sister) of someone with a single ventricle heart condition can be really hard. Like any sibling relationship, there will be things around fairness, competition, reliability, and enjoying time together. However, when your sibling has a single ventricle heart condition, these feelings can be much more intense. You might feel like you want to have a “normal” life, but you might also want your brother or sister to get the right sort of support so they can have a “normal” life too.
As a sibling, you play a big and important role in the life of your brother or sister. Not only will you play a part in their social life, but you’ll probably also help your parents look after them, speak up for them, and help them learn and grow.
You can join our Zipper Chat which is a special forum just for our young members (this includes you!) so you can chat to other siblings about what life is like for you.
Why not check out Sibs, a charity for brothers and sisters of disabled children and adults, where there’s lots of information and support specifically for siblings like you?
When you are younger yes you might feel jealous—I was at some points because I thought that Ella was getting all of the attention but as I grew older, I realised that it is about all of us and there is no point in being jealous because she needs more help than the average person and that makes her special. – Chloe, 17, Sibling