Siblings

Having a brother or sister with half a working heart can be tough, but you’re in the right place for support.

Being a sibling (brother or sister) of someone with a single ventricle heart condition can be really hard. Like any sibling relationship, there will be things around fairness, competition, reliability, and enjoying time together. However, when your sibling has a single ventricle heart condition, these feelings can be much more intense. You might feel like you want to have a “normal” life, but you might also want your brother or sister to get the right sort of support so they can have a “normal” life too.

As a sibling, you play a big and important role in the life of your brother or sister. Not only will you play a part in their social life, but you’ll probably also help your parents look after them, speak up for them, and help them learn and grow.

You can join our Zipper Chat which is a special forum just for our young members (this includes you!) so you can chat to other siblings about what life is like for you.

Why not check out Sibs, a charity for brothers and sisters of disabled children and adults, where there’s lots of information and support specifically for siblings like you?

When you are younger yes you might feel jealous—I was at some points because I thought that Ella was getting all of the attention but as I grew older, I realised that it is about all of us and there is no point in being jealous because she needs more help than the average person and that makes her special. – Chloe, 17, Sibling

 

 

Be social with us - our latest tweets and posts

    We are excited to share our brand new 'LHM Energy project with spoons' poster!

    This poster is latest addition to our Energy Pack - helping children and young people with a single ventricle heart understand and explain their energy levels.

    If you would like an energy pack with the new poster sent to you, email [email protected]
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    3 hours ago  ·  

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    As part of the #myquestion campaign, created by the South Wales and South West Congenital Heart Disease Network (SWSW CHD), we are featuring and responding to questions, signposting to information and giving ideas to help you and your family feel supported and find answers which may work for your own situation.

    This week we are asking:

    𝗜 𝗵𝗮𝘃𝗲 𝗯𝗲𝗲𝗻 𝘁𝗼𝗹𝗱 𝗜 𝗻𝗲𝗲𝗱 𝗳𝘂𝗿𝘁𝗵𝗲𝗿 𝘀𝘂𝗿𝗴𝗲𝗿𝘆 𝗮𝗻𝗱 𝗜 𝗮𝗺 𝘄𝗼𝗿𝗿𝗶𝗲𝗱 𝗮𝗯𝗼𝘂𝘁 𝗵𝗮𝘃𝗶𝗻𝗴 𝗮 𝗵𝗲𝗮𝗿𝘁 𝗼𝗽𝗲𝗿𝗮𝘁𝗶𝗼𝗻. 𝗪𝗵𝗲𝗿𝗲 𝗰𝗮𝗻 𝗜 𝗴𝗲𝘁 𝗵𝗲𝗹𝗽?

    When your doctor talks to you about having further treatment and or surgery you may have lots of questions and may feel a range of emotions from relief to worry. You may wonder what will happen next, what will the implications for my health in the future be and how do I get support.

    We have a number of toolkits, made in partnership with Wallace & Gromit's Grand Appeal, which can help you and your family with top tips, ideas and thoughts about how to cope and how to access support. Including helping your child cope with medical procedures; you can find this toolkit here
    👉 bit.ly/38Q0UXw

    #myquestion #CHDNetwork #CHDToolkit
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    4 hours ago  ·  

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