Youth booklets

We’ve written various information booklets for you to help you understand your heart condition as well as about different areas of your life that you might need a bit more information on such as making career plans, relationships, and education support.

Living with anticoagulation

This booklet is to help you understand why anticoagulation is needed, how to manage it on a day-to-day basis, and what the potential risks are.

Sports and exercise

This booklet was written for parents, but it will also be useful for you. It gives overall guidance for leisure and school sports and exercise, and includes a chart which can be used to give an up-to-date personalised picture of what is safe for you.

Travel and trips

If you’re going away on holiday, for the weekend, or even going away for without your parents, this booklet will help you to plan what you need to do to make sure you have a great time and stay safe.

Information filofax

This is a plastic filofax which contains information on single ventricle heart conditions, possible treatments and lifestyle information. This can be added to as the charity produces more information.

Be social with us - our latest tweets and posts

    Hope 🌈

    "Hello! This is my first time posting since recently joining this group. Here’s my favourite lock-down picture of my son Toby (Complex Pulmonary Atresia), he’s just over 2 years old."

    "We’ve been shielding and now very nervously trying to get back to some normality...for Toby and his 5 year old sister."

    Quote shared by LHM parent member Carlie x
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    2 days ago  ·  

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    Reaching Milestones in Lockdown | Elijah's Fontan Progress

    An update from LHM parent member Michelle, mum to Elijah who had his Fontan operation 2 years ago...

    "Hard to believe this was 2 years ago, and then a pic of him now! 😍 We couldn’t have got through our journey so far without the amazing support from the NHS and the LHM team. We will always be thankful."

    Half a Heart, Not Half a Life x
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    3 days ago  ·  

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