Support we offer

Little Hearts Matter is here to support young people through every step of their half a heart journey. We’re here to help you learn more about your heart condition, how it affects your everyday life and how to take steps towards independence.

We provide:

  • Support and information through our support line, email and social media.
  • Events to help you learn more about your heart condition.
  • Information booklets to help you learn about all the medical stuff.
  • Activity weekends so that you can meet others in a similar situation and have lots of fun!
  • Putting you in touch with other Youth Members so that you can start to make friends with others like you.
  • Help with lifestyle issues including DLA, PIP, education, employment, sports and exercise, sex and relationships, drugs and alcohol.

To become a LHM Youth Member you can register through the website – it’s free to join and means that you can access all of the support offered above.

Be social with us - our latest tweets and posts

    Rhys here is 9 and has Hypoplastic Left Heart Syndrome. Rhys just celebrated his 4 year heart-iversary, 4 years since his Fontan operation. Well done, you've got this!Shared by LHM member Terri, thank you ❤ ... See MoreSee Less

    1 hour ago  ·  

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    This Black History Month we would love to tell you about Vivien Thomas, a cardiologist who played a crucial role in the development of treatment for children born with Tetralogy of Fallot, also known as Blue Baby Syndrome, and other conditions. Thomas pioneered an operation now known as the Blalock-Thomas-Taussig shunt. At the time, Thomas was disregarded because of racism and prejudice against his lack of an academic background, sadly it was not until the 1980’s that the procedure included his name. The procedure is still used to this day and has helped many of our members. Join us to celebrate this amazing man. ... See MoreSee Less

    5 hours ago  ·  

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