Youth Forum

The Little Hearts Matter Youth Forum is made up of young members and their siblings aged 11-24, and they help LHM decide what services and support we should be offering our Youth Members.

You may have heard about our past youth councils which were great, we are however looking for the future and wanted to find a way to hear the voices of more of our youth members and their siblings. Hence the new YOUTH FORUM!

Every 6 months LHM will be inviting 5 members of all ages and locations to be part of the youth forum for a term of 6 months. Even though this is by invitation you are more than welcome to volunteer and we can see what we can do.

The Youth Forum will have regular meetings on Skype, as well as meeting up during the Open Day to chat to young members and plan what they’d like to do for their term of 6 months. The Youth Forum will continue to do a lot of interesting and exciting things like the youth council did; such as going to the Houses of Parliament, going on the radio, creating an information DVD about life with half a heart and ensuring that they believe their peers (the youth members) are represented and supported in the correct way!

If you’d like to find out more, or get involved with the Youth Forum then get in touch!

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    There are still some free places available for our family event at the Discovery Museum in Newcastle on Wednesday 19th February (for young people aged 8+ and parents)

    Workshops will cover current trends we see every day with our members and create a safe place to talk, share experiences if you would like to and learn more about managing day to day life with half a working heart. Children under 8 are welcome but need to stay with their parents in their workshop.

    After our workshops we will have lunch and a chance to experience and walk around the museum together with Suzie and Lexie or with your family.

    Click the link to below to book 👇
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    3 hours ago  ·  

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    Bristol Royal Hospital for ChildrenThis week's question: "What happens when my child starts asking me questions about my illness?"The South Wales and South West Congenital Heart Disease Network (SWSW CHD) have been asking our cardiac families how they can help them feel more supported. So to help, we have launched the #myquestion campaign in partnership with Wallace & Gromit's Grand Appeal. We will be featuring these questions and signposting to information and ideas to help you find an answer which works for your own situation.

    This week we are asking:

    𝗪𝗵𝗮𝘁 𝗵𝗮𝗽𝗽𝗲𝗻𝘀 𝘄𝗵𝗲𝗻 𝗺𝘆 𝗰𝗵𝗶𝗹𝗱 𝘀𝘁𝗮𝗿𝘁𝘀 𝗮𝘀𝗸𝗶𝗻𝗴 𝗺𝗲 𝗾𝘂𝗲𝘀𝘁𝗶𝗼𝗻𝘀 𝗮𝗯𝗼𝘂𝘁 𝗺𝘆 𝗶𝗹𝗹𝗻𝗲𝘀𝘀?

    It is natural to think about how you talk to your child about your own cardiac condition. Your approach will depend on a range of factors which will be individual to your own circumstance – what does your child already know, how old are they, what are their own health experiences that might help or hinder their understanding.

    Our toolkit can help you with top tips and ideas about where to start and things to think about. You can also talk to your specialist nurse and psychology team who and help you think about what to say.

    Take a look at the toolkit and find out more on the SWSW CHD website

    #myquestion #CHDNetwork #CHDToolkit
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    5 hours ago  ·  

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