Reader panel

Can you help us to keep informing young people and families about life with half a working heart?

We need you to help us to maintain and develop our medical and lifestyle information by volunteering to become a reviewer on our Youth Reader Panel. It would only take a few hours a year and you can do it from home in your PJ’s (although we would also hope to get together once a year to discuss any issues, share ideas and put faces to names).

We are looking for lots of young people with different backgrounds and experiences and no previous knowledge is required. We’ll send you our information booklets before they are sent off to be published and will ask for your feedback on the content, tone, layout, and structure of the publications.

Your help would really help LHM continue supporting young people and their families through every step of their half a heart journey. 

If you are interested please contact us or call 0121 455 8982 to have a quick chat with Deb, LHM’s Design and Information Administrator.
DEB(pink)

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    “Esmé has Hypoplastic Left Heart Syndrome and underwent a bilateral CAVO operation recently at Alder Hey Hospital. This video was just 4 days post-operation, showing how happy she is! Esmé is receiving just a flow to support breathing with no oxygen requirement.”

    “Being in hospital having surgery at this difficult time is hard but we’re thankful that extra measures have been put into place to protect her including a room of her own whilst she recovers and gets fit enough to go home and isolate 💕 “
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