Reader panel

Can you help us to keep informing young people and families about life with half a working heart?

We need you to help us to maintain and develop our medical and lifestyle information by volunteering to become a reviewer on our Youth Reader Panel. It would only take a few hours a year and you can do it from home in your PJ’s (although we would also hope to get together once a year to discuss any issues, share ideas and put faces to names).

We are looking for lots of young people with different backgrounds and experiences and no previous knowledge is required. We’ll send you our information booklets before they are sent off to be published and will ask for your feedback on the content, tone, layout, and structure of the publications.

Your help would really help LHM continue supporting young people and their families through every step of their half a heart journey. 

If you are interested please contact us or call 0121 455 8982 to have a quick chat with Deb, LHM’s Design and Information Administrator.
DEB(pink)

Be social with us - our latest tweets and posts

    Rhys here is 9 and has Hypoplastic Left Heart Syndrome. Rhys just celebrated his 4 year heart-iversary, 4 years since his Fontan operation. Well done, you've got this!Shared by LHM member Terri, thank you ❤ ... See MoreSee Less

    3 hours ago  ·  

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    This Black History Month we would love to tell you about Vivien Thomas, a cardiologist who played a crucial role in the development of treatment for children born with Tetralogy of Fallot, also known as Blue Baby Syndrome, and other conditions. Thomas pioneered an operation now known as the Blalock-Thomas-Taussig shunt. At the time, Thomas was disregarded because of racism and prejudice against his lack of an academic background, sadly it was not until the 1980’s that the procedure included his name. The procedure is still used to this day and has helped many of our members. Join us to celebrate this amazing man. ... See MoreSee Less

    6 hours ago  ·  

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