What can you do?

LHM Youth Members can get involved with us in lots of different ways.This website allows you to meet new people, pass on your experiences and find out what other opportunities we offer throughout the year. Your voice matters to us at Little Hearts Matter so we want you be involved as much as possible!

Activity events

Throughout the year Little Hearts Matter hold different events that you can be part of.  If you take on the challenge, you could be taking part in one of our activity weekends where you can be experiencing canoeing or abseiling or coming along to a youth day trip. We love to visit zoo’s, space centres and other cool places. We also hold events like our filming event, where our Youth Members managed and produced a professional film telling their half a heart journey. Each event you get involved with means meeting new people and being involved with some fun and exciting new experiences, so keep a look out for the next one!


For our Youth Members aged 13+, you will have access to our private Facebook page and Facebook Group Chat. This will give you the opportunity to share any stories or ask other Youth Members any questions. Make sure you keep up to date with this page as there will be quizzes and games that you can be involved with, LHM news, lifestyle advice along with the chance to share your ideas to help Little Hearts Matter.


For our Youth Members aged 13+, you will have access to our private Instagram page. This will give you the opportunity to share any pics of achievements or ask other Youth Members any questions. Make sure you keep up to date with this page as there will be plenty of opportunities to celebrate achievements as well as getting useful info.


Open Day

Little Hearts Matter open days are a time for all our Youth Members and their families to come together from all over the country and take part in some of our amazing workshops. These involve information on first aid, your heart and body image, all while including some fun and games, not to mention the pizza and evening event. There will also be a space for our 18+ members to meet and have a chat, away from the workshop sessions. This is a great chance for you to meet new people and share stories with other Youth Members just like you!


When you become a LHM Youth Members you will receive our ‘Big Hearts Matter’ youth newsletter. This includes articles about living with half a heart, upcoming events, hints and tips youth members stories and so much more. All of our newsletters will also give you the opportunity to be involved with some of our competitions and games!

Regional events

We also hold regional events that enable you to meet other LHM Youth Members that are near by and get some more information about your heart. Keep up to date on where we are of to next so you can come and meet us and the other youth members!

Be social with us - our latest tweets and posts

    Slowly but surely, the days are getting a little longer, brighter and warmer. Makes a huge difference, doesn’t it. This past year, our focus has been, and always will be, to support families on their half a heart journey. When the pandemic is over, we will still be here, helping them through feelings of fear, isolation and lack of understanding – because they are on a life-long journey. So, as we all take baby steps towards normality, we ask the public to carry a new approach with you into the future - simply be mindful of vulnerable groups, always, even after Covid. Cannot wait to see our members getting out and having fun again! ... See MoreSee Less

    4 hours ago  ·  

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    Jump to 2021, our support services have evolved into something special. We now have a wealth of information available to families of all single ventricle heart conditions. This includes our ever-expanding library of publications. We create specialised information, tailor-made for our members as they navigate life with a single ventricle heart. One of the many ways that makes our work so unique. Our latest publication is no different and was designed to support young people with half a heart as they navigate sex & relationships. This guidance is for young people aged 16+ and it is available as a free download here: bit.ly/2MLchKR ... See MoreSee Less

    1 day ago  ·  

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