#mynormalisdifferent – supporting young people with a single ventricle heart condition.
Lexie Katsaitis – LHM Youth Support Leader
The last year has seen the world adapting to a new normal due to a worldwide pandemic. A life more isolated with restrictions on what we are able and unable to do. A normal where we try live our day to day lives even with the worry of a potentially debilitating illness in the back of our minds. A very different normal to most people.
The uncomfortable truth is that for young people with half a working heart your new normal was their day to day life before the world was affected by COVID-19. And during the pandemic their new normal was this magnified.
The Little Hearts Matter youth support service had tailored their support to work with, empower and support young people with single ventricle heart conditions before this pandemic. During it, we had to adapt this support to not only ensure that we were there for our youth members at a time we could not physically be there but to ensure that the support we provided lifted our youth members up and supported them when they struggled not only with life as a young person with half a heart, but as a young person with half a heart during a worldwide pandemic.
We have worked hard to ensure that our youth members not only felt like part of a community by offering virtual group parties, chat groups, games and Netflix parties but that they had a safe space to go to when the stress became too much or when they fell ill and needed support, like one of youth members Lucy.