‘He’s The Apple of Grandma’s Eye’- Richard’s Story

Max’s Grandparents were living in bliss in France. He’d even given up on the prospect of being a grandparent, but when the news of the pregnancy came about, he looked forward to watching his grandchildren climb trees and introducing them to the South of France.

Little did Richard know that a congenital heart defect was to follow. Max was born, and a few days later, underwent his first open heart surgery.

There he was safely cocooned in his oxygen capsule with pipes seemingly coming from everywhere and beeps and whistles sounding all around, I blubbered like a baby – how was this journey going to go?

That first Christmas, Max’s grandparents stayed in a car park and commuted to the hospital. But Richard did have to eventually return to France and did a lot of research on Hypoplastic left heart syndrome. Slowly, Max’s brother also came to trust his grandparents, realizing that they didn’t want to get between them and their special bond.

Ultimately, Max’s grandparents decided to move back to England to support their family. Amidst the difficulty of Max’s Fontan, they contributed by making school runs, trips to the park, and helping with homework whilst Max’s parents were with him.

Apparently, Max is the apple of Grandmas eye and can do no wrong!

To read more about Richard and Max, click here.

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    Slowly but surely, the days are getting a little longer, brighter and warmer. Makes a huge difference, doesn’t it. This past year, our focus has been, and always will be, to support families on their half a heart journey. When the pandemic is over, we will still be here, helping them through feelings of fear, isolation and lack of understanding – because they are on a life-long journey. So, as we all take baby steps towards normality, we ask the public to carry a new approach with you into the future - simply be mindful of vulnerable groups, always, even after Covid. Cannot wait to see our members getting out and having fun again! ... See MoreSee Less

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    Jump to 2021, our support services have evolved into something special. We now have a wealth of information available to families of all single ventricle heart conditions. This includes our ever-expanding library of publications. We create specialised information, tailor-made for our members as they navigate life with a single ventricle heart. One of the many ways that makes our work so unique. Our latest publication is no different and was designed to support young people with half a heart as they navigate sex & relationships. This guidance is for young people aged 16+ and it is available as a free download here: bit.ly/2MLchKR ... See MoreSee Less

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