‘My Life So Far With Tricuspid Atresia’- Ryan’s Story

Ryan was born in Jun 1997, and was diagnosed with tricuspid atresia, having his first operation at just 3 weeks old.

At school, Ryan does recall struggling physically, and notes that he was treated a bit like ‘an egg about to crack at any moment’. But he got along with everyone, despite that being a little annoying. He knew that it was just other people’s way of caring about him.

He did have to have warfarin blood tests, meaning that he had to wake up at 7AM to have his finger pricked to check how thick his blood was. However, the worst of it was the MRI scans, which he hated. He still has to go through that, but it doesn’t bother him as much anymore.

Ryan’s condition, despite the difficulty and frustration he says it can cause, hasn’t stopped him from enjoying life. He’s been to Greece, Turkey and America. He’s also discovered his passion, playing bass guitar in an original hard rock band. He left school to study music performance. He’s getting on well and has even had an opening for other bands at the 02 Academy in Birmingham.

And that’s about up to date! I have always been encouraged by my parent’s to follow my dreams, so to everyone out there follow your dreams and don’t give up on your personal goals no matter how big or small.

To read more about Ryan, click here.

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    Nominations are open for our next Brave Hearts Awards 🏅

    We know that a lot of our young people miss out on awards and trips at school and we feel that they, like every young person should be rewarded for what they learn and how they develop 🙌

    If you know of a young person with a single ventricle heart aged between 8-17 that has achieved and grown, take a look at our list of awards on www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/ 👈

    Nominations will close at the end of January 2020 📅
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    8 hours ago  ·  

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    👋 Meet Archie, he is 7 years old and was born with Tricuspid Atresia (TA) a rare congenital heart condition. Archie had his Fontan procedure in September at the University Hospital Southampton, Ocean Ward. The aim of the Fontan procedure is to give a child as much energy as having only half a pumping heart will allow. If surgery has gone to plan the children will gradually recover from the operation and go on to gain far more energy than they had before. He had a longer stay than anticipated, due to a number of complications, but was discharged in October.

    ❤️ “The staff, nurses, doctors, consultants and surgeon were utterly wonderful and we can’t thank them enough. However, it was a consultant anaesthetist, Dr Andy Curry, who stood out in Archie’s mind. His bedside manner, and the relationship of trust that he managed to build up with our very anxious little boy, was astounding to watch. So, on ‘Dress as your Hero Day’ at school, Archie wanted to dress as his hero…”I want to dress as Dr Andy because he helped save my life and he’s my friend”…gulp” – Archie’s mum Charlene.

    😻 We have been blown away by this story. A month after coming home from hospital and Archie is raising a smile, dressing up as his hero and on his way to school. This is one strong boy, as are all of the children in the LHM family.

    🙌 Give this post a share to show your support of Children’s day.

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    University Hospital Southampton NHS Foundation Trust
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    1 day ago  ·  

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