‘My Life So Far With Tricuspid Atresia’- Ryan’s Story

Ryan was born in Jun 1997, and was diagnosed with tricuspid atresia, having his first operation at just 3 weeks old.

At school, Ryan does recall struggling physically, and notes that he was treated a bit like ‘an egg about to crack at any moment’. But he got along with everyone, despite that being a little annoying. He knew that it was just other people’s way of caring about him.

He did have to have warfarin blood tests, meaning that he had to wake up at 7AM to have his finger pricked to check how thick his blood was. However, the worst of it was the MRI scans, which he hated. He still has to go through that, but it doesn’t bother him as much anymore.

Ryan’s condition, despite the difficulty and frustration he says it can cause, hasn’t stopped him from enjoying life. He’s been to Greece, Turkey and America. He’s also discovered his passion, playing bass guitar in an original hard rock band. He left school to study music performance. He’s getting on well and has even had an opening for other bands at the 02 Academy in Birmingham.

And that’s about up to date! I have always been encouraged by my parent’s to follow my dreams, so to everyone out there follow your dreams and don’t give up on your personal goals no matter how big or small.

To read more about Ryan, click here.

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    “Thank you very much for Chris' card. I cannot believe he is 18 and am so proud of the lovely young man he has become, overcoming the many challenges we have faced over the years, especially in the first 4 to 5 years. Thank you Little hearts matter for always being there.”

    Thank you to Chris and mum Philippa for sharing this fantastic news with us, we hope this brings some inspiration to the many families out there who are at the start of their half a heart journey.

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    So pleased to see Amelia here, DILV, enjoying some cycling along with her sister Evie…

    “We’ve been doing a lot of cycling this week as both girls have grown in confidence. I’m amazed at Amelia’s stamina on the bike, doing much more exercise than she’s ever done. This is the girl that needs a buggy to get home from school (in normal life). She’s found a sport that she can comfortably do. She says she feels free when she’s cycling. That makes me happy and sad at the same time ❤ “Cycling makes me feel free, happy and like nothing is in my way””

    Riding a bike is great exercise for children, teenagers and adults with half a working heart. It helps get you from A to B but is also is supported exercise for the lower body and therefore provides good support for blood returning to the lungs. There are many incentives to help get you on a bike, at the moment.

    Learn more by jumping to our ‘get fit for winter’ resource here: www.lhm.org.uk/information/lifestyle-information/get-fit-for-winter/
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