Alasdair’s father David writes about his experiences in trying to support his son who has a single ventricle heart condition.
After finding out about his son’s heart condition, David reacted in only way a Medical Physicist could. He used his health research skills and found all the medical literature he could about the condition. He even found out about research groups in America and a father who was holding a conference about a single ventricle heart condition.
However, David’s wife Helen reminded him that ‘You can’t live in a doctor’s office.’ David knew that he was Alistair’s father, not his doctor. He writes that he had to understand that Alasdair’s medical team came to decisions without David being involved in them. That’s when Suzie Hutchinson here at Little Hearts Matter helped David understand that
We might not be in charge but we have to be part of the team.
David realized that Alasdair had the ‘real work’ of managing his condition. David describes the difficulty of watching his son go on a school trip and be one of the only ones too short to ride the roller coaster, to go on bike rides and be overtaken. That’s when being a physicist is no help at all. David affirms that these are the real issues that need dad support.
To read more about David, click here.