‘I Thought It Happened To Other People Far Away’- Maia on her son MacFhionnlaigh

Maia is the mother of MacFhionnlaigh, who has Hypoplastic Left Heart syndrome. She writes how Mac entering her and her family’s life has molded them into better people. He has taught them to laugh more, cry more, and to measure life by love and not years.

Maia is a Navy mum, meaning that whilst her husband is deployed, she’s raised four girls fairly independantly already! But she has had her share of sacrifices and difficulties. For example, the girls can’t bring their friends around just in case Mac picks up a virus or bug and Maia has not been able to socialize as much as she used to. Her biggest fear is Mac dying. He has even come close to it and has been written off. But Rebel is in his in his middle name (it really is) and Maia is certain that he lives up to it.

Their cardiologist has told them not to worry about the future too much, but to worry about the here and now; loving Mac and helping him grow and develop.

To read more about Mac, check out our Newsletter.

 I am empowered and there is nothing left to fear.

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    Tonight's episode of 'My Life' on CBBC follows the amazing story of LHM youth member Jack, tune in at 5:30 PM ❤️

    'My New Heart' follows Jack's inspiring journey through living with half a working heart, his transplant and life post transplant. This is a moving documentary we were privileged to help out with and thankful to be credited at the end to help spread awareness of life with a single ventricle heart.

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    Single ventricle conditions are so rare that many of our families do not know anyone else locally who is facing the same challenges. Through our private social media groups and the LHM newsletter, we are able to link our members with other heart families across the UK.

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