‘I think this stuck hard with me after he died…’- Stephen’s Story

After sadly losing their little boy Sean (4) through complications after surgery, Stephen recalls feeling completely broken.

Sean was brave and confident, and demonstrated these through his adoration of swimming. When he was in hospital, Sean said that he would never swim again.

I think this stuck hard with me after he died, the guilt I felt at the thought of ever getting back in the swimming pool without him was so overwhelming, I avoided the pool at all costs.

When Stephen’s daughter started school was learning how to swim, he recalls how daunting it was daunting for him to get back into the water because that wonderful, energetic activity was always associated with Sean, who had passed on. It was hard to get back into the normality of taking his daughter swimming as he sat in tears on the poolside.

But when he heard about the Big Hearted Swimathon in 2015, Stephen knew this could be his way to face his fears and get back into the pool. It wasn’t easy though, because that meant swimming the length of the channel (1416 lengths of a 25 meter pool!) Stephen was overwhelmed by the responses of people, over 60 people would attend to share the lengths with him, all for Sean.

In the end they raised over £3000!

To read more about Stephen and Sean, click here.

 

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    Nominations are open for our next Brave Hearts Awards 🏅

    We know that a lot of our young people miss out on awards and trips at school and we feel that they, like every young person should be rewarded for what they learn and how they develop 🙌

    If you know of a young person with a single ventricle heart aged between 8-17 that has achieved and grown, take a look at our list of awards on www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/ 👈

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    👋 Meet Archie, he is 7 years old and was born with Tricuspid Atresia (TA) a rare congenital heart condition. Archie had his Fontan procedure in September at the University Hospital Southampton, Ocean Ward. The aim of the Fontan procedure is to give a child as much energy as having only half a pumping heart will allow. If surgery has gone to plan the children will gradually recover from the operation and go on to gain far more energy than they had before. He had a longer stay than anticipated, due to a number of complications, but was discharged in October.

    ❤️ “The staff, nurses, doctors, consultants and surgeon were utterly wonderful and we can’t thank them enough. However, it was a consultant anaesthetist, Dr Andy Curry, who stood out in Archie’s mind. His bedside manner, and the relationship of trust that he managed to build up with our very anxious little boy, was astounding to watch. So, on ‘Dress as your Hero Day’ at school, Archie wanted to dress as his hero…”I want to dress as Dr Andy because he helped save my life and he’s my friend”…gulp” – Archie’s mum Charlene.

    😻 We have been blown away by this story. A month after coming home from hospital and Archie is raising a smile, dressing up as his hero and on his way to school. This is one strong boy, as are all of the children in the LHM family.

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