‘I think this stuck hard with me after he died…’- Stephen’s Story

After sadly losing their little boy Sean (4) through complications after surgery, Stephen recalls feeling completely broken.

Sean was brave and confident, and demonstrated these through his adoration of swimming. When he was in hospital, Sean said that he would never swim again.

I think this stuck hard with me after he died, the guilt I felt at the thought of ever getting back in the swimming pool without him was so overwhelming, I avoided the pool at all costs.

When Stephen’s daughter started school was learning how to swim, he recalls how daunting it was daunting for him to get back into the water because that wonderful, energetic activity was always associated with Sean, who had passed on. It was hard to get back into the normality of taking his daughter swimming as he sat in tears on the poolside.

But when he heard about the Big Hearted Swimathon in 2015, Stephen knew this could be his way to face his fears and get back into the pool. It wasn’t easy though, because that meant swimming the length of the channel (1416 lengths of a 25 meter pool!) Stephen was overwhelmed by the responses of people, over 60 people would attend to share the lengths with him, all for Sean.

In the end they raised over £3000!

To read more about Stephen and Sean, click here.

 

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    Every child with a single ventricle heart condition should have a Health Care Plan in place in school. It is a statutory requirement. The plan sets out all the ways to monitor and respond to your individual children’s needs. Health Care Plan, HCP’s, can be put in place from the age of 0 to 24 years old. Each Local education authority will have their own plan but they will all cover the same information. For more information on what to include in the plan follow the link www.lhm.org.uk/information/lifestyle-information/education/health-care-plans-for-children-and-you... ... See MoreSee Less

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    Stuck for a Mothering Sunday present? Lucy Houle is giving 10 per cent of all sales of this gorgeous Cobblestone with Hot Pink Handles Medium Tote Bag to Little Hearts Matter! bit.ly/2Tpyo76
    Lucy has made this commitment due to her close friendship with Fiona Pollard and Lucia. Lucy explained,

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    Lucia was born with a rare defect that means she has half a heart and the condition is life limiting and can't be cured. At only 5 years old she's already had several open heart surgery procedures to improve her health.
    I often see them in the playground and at ballet where Lucia is every bit the typical little girl but her smiles hide the very real day-to-day struggles that the family face. Thankfully, they get brilliant support from Little Hearts Matter; the only UK charity that supports this rare condition.
    And we want to support them too, so 10% of each sale of our new bags will go to Little Hearts Matter to help them continue to support children like Lucia."

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