‘I Have A Handmade Heart’- Ben’s Story

Ben would be slightly older now, but when he wrote about his experiences with HLHS, he was only 18.

After sailing through his GCSE’s, like many others, A-Levels came as a huge shock to Ben. Realising that he could implement his skills elsewhere, Ben decided to study BTECH Level 3 Health and Social Care.

He’s never really felt that talking about his condition was difficult and he also felt that having a handmade heart could also be a good thing. Ben’s been given lots of opportunities that he wouldn’t have got without having a handmade heart.

In fact, he won the Diana award, has spoken in the House of Lords, and has even spoken in front of some of the leading cardiac surgeons in the world. Needless to say that Ben has excelled in his personal development.

To read more about Ben, click here.

I have a lot to thank Little Hearts Matter for. Their support over the past 18+ years has been amazing. The things I’ve done with them have been: amazing. The people I’ve met there: amazing. The friendships that I will have for the rest of my life: amazing.

Be social with us - our latest tweets and posts

    “Thank you very much for Chris' card. I cannot believe he is 18 and am so proud of the lovely young man he has become, overcoming the many challenges we have faced over the years, especially in the first 4 to 5 years. Thank you Little hearts matter for always being there.”

    Thank you to Chris and mum Philippa for sharing this fantastic news with us, we hope this brings some inspiration to the many families out there who are at the start of their half a heart journey.

    With YOUR help, we can continue to support the amazing young adults living with a single ventricle heart today, just like Chris here. All you need to do spare 30 seconds of your time every day to vote for LHM in Persimmon’s ‘Building Futures’ initiative.

    They don’t ask for any details, you simply click our logo on this page; biy.ly/support-lhm

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    10 hours ago  ·  

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    So pleased to see Amelia here, DILV, enjoying some cycling along with her sister Evie…

    “We’ve been doing a lot of cycling this week as both girls have grown in confidence. I’m amazed at Amelia’s stamina on the bike, doing much more exercise than she’s ever done. This is the girl that needs a buggy to get home from school (in normal life). She’s found a sport that she can comfortably do. She says she feels free when she’s cycling. That makes me happy and sad at the same time ❤ “Cycling makes me feel free, happy and like nothing is in my way””

    Riding a bike is great exercise for children, teenagers and adults with half a working heart. It helps get you from A to B but is also is supported exercise for the lower body and therefore provides good support for blood returning to the lungs. There are many incentives to help get you on a bike, at the moment.

    Learn more by jumping to our ‘get fit for winter’ resource here: www.lhm.org.uk/information/lifestyle-information/get-fit-for-winter/
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    16 hours ago  ·  

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