‘I Have A Handmade Heart’- Ben’s Story

Ben would be slightly older now, but when he wrote about his experiences with HLHS, he was only 18.

After sailing through his GCSE’s, like many others, A-Levels came as a huge shock to Ben. Realising that he could implement his skills elsewhere, Ben decided to study BTECH Level 3 Health and Social Care.

He’s never really felt that talking about his condition was difficult and he also felt that having a handmade heart could also be a good thing. Ben’s been given lots of opportunities that he wouldn’t have got without having a handmade heart.

In fact, he won the Diana award, has spoken in the House of Lords, and has even spoken in front of some of the leading cardiac surgeons in the world. Needless to say that Ben has excelled in his personal development.

To read more about Ben, click here.

I have a lot to thank Little Hearts Matter for. Their support over the past 18+ years has been amazing. The things I’ve done with them have been: amazing. The people I’ve met there: amazing. The friendships that I will have for the rest of my life: amazing.

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    “Esmé has Hypoplastic Left Heart Syndrome and underwent a bilateral CAVO operation recently at Alder Hey Hospital. This video was just 4 days post-operation, showing how happy she is! Esmé is receiving just a flow to support breathing with no oxygen requirement.”

    “Being in hospital having surgery at this difficult time is hard but we’re thankful that extra measures have been put into place to protect her including a room of her own whilst she recovers and gets fit enough to go home and isolate 💕 “
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