‘I Have A Handmade Heart’- Ben’s Story

Ben would be slightly older now, but when he wrote about his experiences with HLHS, he was only 18.

After sailing through his GCSE’s, like many others, A-Levels came as a huge shock to Ben. Realising that he could implement his skills elsewhere, Ben decided to study BTECH Level 3 Health and Social Care.

He’s never really felt that talking about his condition was difficult and he also felt that having a handmade heart could also be a good thing. Ben’s been given lots of opportunities that he wouldn’t have got without having a handmade heart.

In fact, he won the Diana award, has spoken in the House of Lords, and has even spoken in front of some of the leading cardiac surgeons in the world. Needless to say that Ben has excelled in his personal development.

To read more about Ben, click here.

I have a lot to thank Little Hearts Matter for. Their support over the past 18+ years has been amazing. The things I’ve done with them have been: amazing. The people I’ve met there: amazing. The friendships that I will have for the rest of my life: amazing.

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    Tonight's episode of 'My Life' on CBBC follows the amazing story of LHM youth member Jack, tune in at 5:30 PM ❤️

    'My New Heart' follows Jack's inspiring journey through living with half a working heart, his transplant and life post transplant. This is a moving documentary we were privileged to help out with and thankful to be credited at the end to help spread awareness of life with a single ventricle heart.

    'My Life - My New Heart' premieres on CBBC tonight, Tuesday 18th at 5:30 PM.
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    Social Media Support

    Single ventricle conditions are so rare that many of our families do not know anyone else locally who is facing the same challenges. Through our private social media groups and the LHM newsletter, we are able to link our members with other heart families across the UK.

    This gives them a chance to keep up to date with the charity and connect with other parents going through similar experiences. We also offer one-to-one chat support through Facebook messenger, we always have an ear to listen and we’d love to hear from you ❤️

    Click here to explore our private Facebook groups for LHM members m.facebook.com/littleheartsmatter/groups/?ref=page_internal&mt_nav=0
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