‘I Get Really Frustrated and Unhappy…Because I Can’t Represent The School’- Hannah’s Story

Hello my name is Hannah and I’m 10 years old and I have a handmade heart. The name of my heart condition is hypoplastic left heart syndrome, which means that only half of my heart works.

I was very poorly when I was born and I’ve had three heart operation and three cardiac catheters. I’m proud of myself for being able to go to school and take part in school routine.

When I had my first operation I had to be NG tube fed up until I was 4 years old. This meant that a tube was placed through my nose into my stomach. I remember being at my nan’s when my mummy would change my NG tube and I did not like it at all, it made me feel sick.

I was eight months old when I had my second operation. I was in hospital for 10 days. I do not like being in hospitals as it makes me very unhappy, but I know the nurses and doctors help me.

When I was five years old I underwent my third surgery and was in hospital for three weeks. When I had my chest drains out I got an infection which ended up all around my scar. As a treat for being so brave I went to London to meet Simon Cowell and spent time at the X Factor. I really enjoyed myself.

I enjoy school and learning about history (I just done a written paper on henry vlll ) and maths. I’m in the school choir and I like playing on my Xbox. I have a dog called Polly, two fish, one rabbit and two budgies.

I don’t mind having a special heart but I really get frustrated and unhappy. I feel this way because I feel left out sometimes because of my heart condition as I can’t represent the school (in sports etc.) because I will get too tired.

When I grow up I want to be a vet and historian and my hobby will be maths. I feel kind of proud of what I’ve achieved but feel I haven’t done enough at school to feel proud. I talk to my teachers, mummy and my nan’s and they help me to feel better about it.


Be social with us - our latest tweets and posts