‘I Can’t Make It (Luke’s Heart) Normal’- Joanne, Martin, Ethan, and Luke

Luke’s family reflect together on their experiences of having a loved one with a congenital heart condition. After the anomaly scan revealed that Luke would have half a heart among other conditions, Joanne and Martin spent days at home under a dark cloud and in tears.  But they found support in friends, family and Little Hearts Matter.  Luke’s mother Joanne recalls the fear of taking her son into surgery, of course preferring to spend time at home. This is a struggle many parents of children with congenital heart conditions to go through and Joanne does admit that accepting it took several years.

When Luke was in hospital, his brother Ethan describes the sadness at watching his brother crying, but also learnt to appreciate the time he could spend with his brother.

When Luke was in hospital it was weird. I would not be able to wake up and see him.

When Luke awoke in hospital, Ethan was able to cherish the moments he got with him, whether it was playing video games or watching a film.

Luke and his father have also written about their experiences. To read more Luke and his family’s story, check out our Newsletter.

Luke’s father Martin is also a brilliant artist, and documented Luke’s time in hospital through his sketchbook. You can see a couple of them below:

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    "Elijah unfortunately couldn't take part in surfing with Beavers on Sunday due to the company not being insured for a person with a heart condition.So, daddy took him to the nearest beach shop and got him a body board, he had a brilliant morning despite being upset initially.It was an eye opener for us, seeking clarification what business insurances cover with certain activities. We hope other families can take something from this x"A huge thank you to heart-mum Michelle for sharing this with us. ... See MoreSee Less

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    A huge thank you to the amazing Laura and Carlie for raising an incredible £1500 for Little Hearts Matter in their first ever 10k running challenge. It is generous people like you that help keep our work going ❤If you would like to smash your fitness goals and raise money for LHM, get in touch with our friendly fundraising team >> [email protected] ... See MoreSee Less

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