‘He Had A Chance Of Surviving’ – Jessica on her son Ollie

By the time of her 12 week scan, Jessica had a high chance of giving birth to a child with Down syndrome and/or a heart condition. The words ‘I can only see half the heart beating’ brought her world crashing down as she sobbed into her husband’s arms.

Their little boy had Hypoplastic Right Heart Syndrome along with other conditions. He was also unlikely to survive the pregnancy.  She continued with it and was also relieved to find out that there were no chromosome abnormalities either. When she found out about Oliver’s condition, she immediately got in touch with Little Hearts Matter and joined their Facebook page.

After his septostomy and stent placement, Ollie was taken home, but he struggled to gain weight. Yet again he was hospitalized and put on a feeding tube.  But after being released again, this issue continued.  Ollie also struggled with oxygen saturation and it was time to have his Glen surgery. But he was underweight, and it was extremely risky.  They went through the surgery, and Jessica recalls the difficulty of seeing Ollie ‘all puffy and swollen.’  He even had a stroke that went undetected.

Little Hearts Matter has supported Jessica from the very beginning and she says ‘it’s such an amazing charity that always has time for you’.

To read more about Jessica and Ollie’s  story, check out our Newsletter.

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    "Elijah unfortunately couldn't take part in surfing with Beavers on Sunday due to the company not being insured for a person with a heart condition.So, daddy took him to the nearest beach shop and got him a body board, he had a brilliant morning despite being upset initially.It was an eye opener for us, seeking clarification what business insurances cover with certain activities. We hope other families can take something from this x"A huge thank you to heart-mum Michelle for sharing this with us. ... See MoreSee Less

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    A huge thank you to the amazing Laura and Carlie for raising an incredible £1500 for Little Hearts Matter in their first ever 10k running challenge. It is generous people like you that help keep our work going ❤If you would like to smash your fitness goals and raise money for LHM, get in touch with our friendly fundraising team >> [email protected] ... See MoreSee Less

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