‘Another Dad Said That Seeing Isobel…Had Given Them Hope’- Paul on his daughter Isobel

Paul recalls his daughter Isobel’s birth. He and his wife were the calmest couple in the hospital. Another couple in a neighboring cot even told him ‘she has you wrapped around her little finger’.

This is certainly true, Paul and Isobel are very close. However, their relationship was so powerful that his wife had to remind her that she was there too! He certainly loves Isabel to bits.

Paul does admit that as a parent, he definitely overdid thing.

‘Feeding tube or not, we were going to meet people.’

Paul recalls the many episodes of mindless joy of having Isobel. A friend once told him: ‘If anything, children with disabilities are even more loved.’ Paul certainly feels that way.

However, being a dad to a heart child does come with its share of hardship. He suggests that being a dad brings out so many good qualities, but it can be tiring. That’s when some ‘less desirable attributes’ show forth.  He also had some darker thoughts at the start, but over time, they subsided.

Paul loves documenting his and Isobel’s life, with wonky videos and lots of photographs.

To read more about Paul, click here.

Little Heart Matter has been a wonderful resource, always accessible despite being so busy. We have gained so much from the 2 AGMs we’ve made it to. At this years Villa Park event, another dad said that seeing Isobel (then aged 2) at the 2012 AGM had given them hope going forward with their own pregnancy. That sort of comment makes it all worthwhile.

 

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    The Youth Zone is our dedicated support network for young adults aged 11 to 17 living with a single ventricle heart condition. During lock-down, we have been working hard to keep our youth members supported and connected with each other.

    We just wanted to shine some light on this awesome bunch, as they have come so far and achieved so much during the Covid Crisis. One of our highlights being this video, a 26 minute exercise challenge via Zoom, all in support of LHM for the 2.6 challenge. They smashed the routine and raised over £500 for us! Thank you.

    The group keeps in touch through regular Netflix parties and lots of healthy discussion on the private message forums, as well as having access to 1-1 support provided by LHM whenever they need it.

    None of this would be possible without our youth leader Lexie and our awesome youth mentors, please can we all thank them for the incredible work they have been doing for these brave young people throughout this crisis.

    Visit the youth zone here lhm.org.uk/youth-zone/
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    2 hours ago  ·  

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    Open Heart Surgery during Lock-down | LHM parent member Rose shares some uplifting words for us.

    "We were very apprehensive about this surgery as the last one he had was a very long recovery. He literally has made so many people proud, Naayt had his open heart surgery on the 11th June and was discharged 11 days later... home! yes, home!"

    "I couldn't believe it either. You will be so amazed at how pink they are after this surgery and its so lovely to see. The only thing that stops them is the drains which he had 1 left in literally 3 days before discharge and his inr being in range which happened on the day he was allowed home."

    "These kids are so amazing and I am so amazed at how fast they can recover and get through these operations."

    Half a Heart, Not Half a Life x
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    18 hours ago  ·  

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