Facebook    

We have an open Facebook site where the Little Hearts Matter team post messages and news. This helps to keep members up to date with the charity’s services, medical advances , fundraising news and awareness campaigns.

www.facebook.com/littleheartsmatter

We also have several closed sites, which are accessible to full members of LHM.

General member site where members of the charity can chat with each other,raise questions and seek the insight of other parents who are also living with the challenges of having a child with a single ventricle heart.

Bereaved member site where parents who have lost a child to complex heart disease can seek the support of other parents and ask questions of each other.

Grandparent member site where grandparent members of the charity can chat to each other and share experiences.

Adults with a single ventricle heart condition – this is a closed group for LHM adult members who live with half a working heart, to talk to each other, share experiences and ask questions.

Hospital transition parent site – this group is for full members of Little Hearts Matter that have a child 14yrs+ with a single ventricular heart condition and are going through the transition from children’s  to adult hospital services.

Twitter

Following LHM on Twitter can provide links to articles, research and support services.

twitter.com/LHM_UK

The Little Hearts Matter blog

Reading other families’ stories about life when a child has half a working heart can offer a true insight into the highs and lows of their journey through treatment. The Little Hearts Matter blog holds a variety of stories that explore every step of the Half a Heart Journey.

Heartlog.tumblr.com

Be social with us - our latest tweets and posts

    "University gave me the opportunity to take control of my heart condition. It was definitely a challenge but 100% worth it".

    Andrew is one of our members, he is also a university graduate! 👨‍🎓He tells a story of overcoming fears, finding new confidence and preparing for adult life after graduation.

    This is Andrew’s story, read it here: bit.ly/2kDXXWF

    #MondayMotivation
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    6 hours ago  ·  

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    👨‍🎓It's University arrival week! 👩‍🎓

    Some of our members will be moving into their University accommodation this week and we couldn’t be more excited for them 🙌

    Higher education is a daunting prospect, but this is an amazing opportunity for you to meet new people, gain some valuable life experience and work towards your chosen career. Just remember, we are here to support you in this new chapter, drop us a PM if you have a question or need someone to talk to.

    Good luck from the LHM family! ❤️
    ... See MoreSee Less

    10 hours ago  ·  

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