Facebook    

We have an open Facebook site where the Little Hearts Matter team post messages and news. This helps to keep members up to date with the charity’s services, medical advances , fundraising news and awareness campaigns.

www.facebook.com/littleheartsmatter

We also have several closed sites, which are accessible to full members of LHM.

General member site where members of the charity can chat with each other,raise questions and seek the insight of other parents who are also living with the challenges of having a child with a single ventricle heart.

Bereaved member site where parents who have lost a child to complex heart disease can seek the support of other parents and ask questions of each other.

Grandparent member site where grandparent members of the charity can chat to each other and share experiences.

Adults with a single ventricle heart condition – this is a closed group for LHM adult members who live with half a working heart, to talk to each other, share experiences and ask questions.

Hospital transition parent site – this group is for full members of Little Hearts Matter that have a child 14yrs+ with a single ventricular heart condition and are going through the transition from children’s  to adult hospital services.

Twitter

Following LHM on Twitter can provide links to articles, research and support services.

twitter.com/LHM_UK

The Little Hearts Matter blog

Reading other families’ stories about life when a child has half a working heart can offer a true insight into the highs and lows of their journey through treatment. The Little Hearts Matter blog holds a variety of stories that explore every step of the Half a Heart Journey.

Heartlog.tumblr.com

Be social with us - our latest tweets and posts

    Join us this evening in lighting a candle of hope. Together we can create a wave of light and everyone can get involved. We are thinking of our families, our communities and our nation this evening. ... See MoreSee Less

    4 hours ago  ·  

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    Please join us as we celebrate these young members achievements and congratulate them on their Brave Heart Awards.
    We awarded a total of 9 Brave Heart Awards this time to some very deserving young members aged 8 -17 years old. Your certificates are in the post.

    Our nominations for the October Award giving are now open. Just follow the link below.
    (Please note that all nominations need evidence. Having a third party such as a coach, play worker or teacher tell us about their achievement is a great way to provide this evidence.)
    www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/

    Well done to all of our Brave Heart Award winners!
    ... See MoreSee Less

    9 hours ago  ·  

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