Facebook    

We have an open Facebook site where the Little Hearts Matter team post messages and news. This helps to keep members up to date with the charity’s services, medical advances , fundraising news and awareness campaigns.

www.facebook.com/littleheartsmatter

We also have several closed sites, which are accessible to full members of LHM.

General member site where members of the charity can chat with each other,raise questions and seek the insight of other parents who are also living with the challenges of having a child with a single ventricle heart.

Bereaved member site where parents who have lost a child to complex heart disease can seek the support of other parents and ask questions of each other.

Grandparent member site where grandparent members of the charity can chat to each other and share experiences.

Over 18s with a congenital heart disorder site – this is a closed group for 18+ LHM senior zippers to talk to each other, share experiences and ask questions.

Hospital transition parent site – this group is for full members of Little Hearts Matter that have a child 14yrs+ with a single ventricular heart condition and are going through the transition from children’s  to adult hospital services.

Twitter

Following LHM on Twitter can provide links to articles, research and support services.

twitter.com/LHM_UK

The Little Hearts Matter blog

Reading other families’ stories about life when a child has half a working heart can offer a true insight into the highs and lows of their journey through treatment. The Little Hearts Matter blog holds a variety of stories that explore every step of the Half a Heart Journey.

Heartlog.tumblr.com

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    If you are booking your summer holiday you might like to look at our Travel and Trips booklet to help with your planning. It is full of tips and ideas for how you can make sure you have a great time but also keep your heart warrior safe. www.lhm.org.uk/information/lifestyle-information/travel-and-trips/ ... See MoreSee Less

    18 hours ago  ·  

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    Children with half a working heart catch colds and coughs just like other children of the same age but of course when you already have a reduced energy level and less oxygen travelling around your body it can knock the children for six. Parents may notice that their child is a bit more cyanosed, a bit bluer, and that they may be a bit more breathless than normal. Keep the children well wrapped up and snug and warm, give them Calpol if their temperature is high, keep the fluids going, small amounts of nourishing food every couple of hours and lots of opportunity to sleep will all help a child recover. HOWEVER, if they have a high temperature for a couple of days or their breathlessness or colour becomes worse take them to the GP for a check-up. If the infection is Viral there will be no point in antibiotics but if the GP thinks antibiotics will help they will be prescribed. If you are worried at all always get your child checked by a doctor. ... See MoreSee Less

    2 days ago  ·  

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