We have an open Facebook site where the Little Hearts Matter team post messages and news. This helps to keep members up to date with the charity’s services, medical advances , fundraising news and awareness campaigns.
We also have several closed sites, which are accessible to full members of LHM.
General member site where members of the charity can chat with each other,raise questions and seek the insight of other parents who are also living with the challenges of having a child with a single ventricle heart.
Bereaved member site where parents who have lost a child to complex heart disease can seek the support of other parents and ask questions of each other.
Grandparent member site where grandparent members of the charity can chat to each other and share experiences.
Adults with a single ventricle heart condition – this is a closed group for LHM adult members who live with half a working heart, to talk to each other, share experiences and ask questions.
Hospital transition parent site – this group is for full members of Little Hearts Matter that have a child 14yrs+ with a single ventricular heart condition and are going through the transition from children’s to adult hospital services.
Following LHM on Twitter can provide links to articles, research and support services.
The Little Hearts Matter blog
Reading other families’ stories about life when a child has half a working heart can offer a true insight into the highs and lows of their journey through treatment. The Little Hearts Matter blog holds a variety of stories that explore every step of the Half a Heart Journey.