Facebook    

We have an open Facebook site where the Little Hearts Matter team post messages and news. This helps to keep members up to date with the charity’s services, medical advances , fundraising news and awareness campaigns.

www.facebook.com/littleheartsmatter

We also have several closed sites, which are accessible to full members of LHM.

General member site where members of the charity can chat with each other,raise questions and seek the insight of other parents who are also living with the challenges of having a child with a single ventricle heart.

Bereaved member site where parents who have lost a child to complex heart disease can seek the support of other parents and ask questions of each other.

Grandparent member site where grandparent members of the charity can chat to each other and share experiences.

Adults with a single ventricle heart condition – this is a closed group for LHM adult members who live with half a working heart, to talk to each other, share experiences and ask questions.

Hospital transition parent site – this group is for full members of Little Hearts Matter that have a child 14yrs+ with a single ventricular heart condition and are going through the transition from children’s  to adult hospital services.

Twitter

Following LHM on Twitter can provide links to articles, research and support services.

twitter.com/LHM_UK

The Little Hearts Matter blog

Reading other families’ stories about life when a child has half a working heart can offer a true insight into the highs and lows of their journey through treatment. The Little Hearts Matter blog holds a variety of stories that explore every step of the Half a Heart Journey.

Heartlog.tumblr.com

Be social with us - our latest tweets and posts

    Nominations are open for our next Brave Hearts Awards 🏅

    We know that a lot of our young people miss out on awards and trips at school and we feel that they, like every young person should be rewarded for what they learn and how they develop 🙌

    If you know of a young person with a single ventricle heart aged between 8-17 that has achieved and grown, take a look at our list of awards on www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/ 👈

    Nominations will close at the end of January 2020 📅
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    8 hours ago  ·  

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    👋 Meet Archie, he is 7 years old and was born with Tricuspid Atresia (TA) a rare congenital heart condition. Archie had his Fontan procedure in September at the University Hospital Southampton, Ocean Ward. The aim of the Fontan procedure is to give a child as much energy as having only half a pumping heart will allow. If surgery has gone to plan the children will gradually recover from the operation and go on to gain far more energy than they had before. He had a longer stay than anticipated, due to a number of complications, but was discharged in October.

    ❤️ “The staff, nurses, doctors, consultants and surgeon were utterly wonderful and we can’t thank them enough. However, it was a consultant anaesthetist, Dr Andy Curry, who stood out in Archie’s mind. His bedside manner, and the relationship of trust that he managed to build up with our very anxious little boy, was astounding to watch. So, on ‘Dress as your Hero Day’ at school, Archie wanted to dress as his hero…”I want to dress as Dr Andy because he helped save my life and he’s my friend”…gulp” – Archie’s mum Charlene.

    😻 We have been blown away by this story. A month after coming home from hospital and Archie is raising a smile, dressing up as his hero and on his way to school. This is one strong boy, as are all of the children in the LHM family.

    🙌 Give this post a share to show your support of Children’s day.

    #ChildrensDay
    University Hospital Southampton NHS Foundation Trust
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    1 day ago  ·  

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