Facebook    

We have an open Facebook site where the Little Hearts Matter team post messages and news. This helps to keep members up to date with the charity’s services, medical advances , fundraising news and awareness campaigns.

www.facebook.com/littleheartsmatter

We also have several closed sites, which are accessible to full members of LHM.

General member site where members of the charity can chat with each other,raise questions and seek the insight of other parents who are also living with the challenges of having a child with a single ventricle heart.

Bereaved member site where parents who have lost a child to complex heart disease can seek the support of other parents and ask questions of each other.

Grandparent member site where grandparent members of the charity can chat to each other and share experiences.

Adults with a single ventricle heart condition – this is a closed group for LHM adult members who live with half a working heart, to talk to each other, share experiences and ask questions.

Hospital transition parent site – this group is for full members of Little Hearts Matter that have a child 14yrs+ with a single ventricular heart condition and are going through the transition from children’s  to adult hospital services.

Twitter

Following LHM on Twitter can provide links to articles, research and support services.

twitter.com/LHM_UK

The Little Hearts Matter blog

Reading other families’ stories about life when a child has half a working heart can offer a true insight into the highs and lows of their journey through treatment. The Little Hearts Matter blog holds a variety of stories that explore every step of the Half a Heart Journey.

Heartlog.tumblr.com

Be social with us - our latest tweets and posts

    "Finally back in preschool this week after 6 months at home!!! ❤️💕 To say that Elliot was happy to finally get to play with his friends would be a massive understatement 😍"

    "Thank you so much Little Hearts Matter for the teacher information pack we have given to Elliot’s preschool. It is reassuring to know that they now have all the information they need to keep him safe and support him in the best possible way ❤️"

    Feedback like this really makes our day. This fantastic message came from Anna, mum to Elliot who has DILV, awaiting his Fontan surgery in the next few months. Thank you Anna. We have been working hard to create new resources for our members and we are so pleased that you found the teachers pack useful.

    Half a heart, not half a life x
    ... See MoreSee Less

    6 hours ago  ·  

    View on Facebook

    LHM Brave Heart Awards! Empowering young people living with half a working heart today.

    Maybe you know an LHM youth member who has achieved something great or has shown a real understanding of their heart condition? Let’s give them some recognition with a Brave Heart Award!

    You can nominate a young person with half a heart for a Brave Heart Award by going to our website here: www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/
    ... See MoreSee Less

    10 hours ago  ·  

    View on Facebook