This area of the website allows visitors to read individual family stories.

There are experiences from parents and young members across the age groups and with many different single ventricle conditions. Further stories can be seen on the Little Hearts Matter blog which can be found by clicking this link: http://heartlog.tumblr.com.

If you would like to contribute your personal story just email us at [email protected].

The Stories My Parents Tell Me About The Whole Experience Scare Me- Thomas Messer

Thomas Messer is a 19 year old musician from Scotland with half a heart, or Hypoplastic Left Heart Syndrome (HLHS). Over the last 19 years Tom has learnt to live with HLHS and all the challenges it has presented to him. His mum, Carole, said: “He copes really well and never complains. Transition has not … Continued

Shane tells Olivia’s story

After my daughter’s third heart operation I broke down in tears because it was the first time I had ever seen her lips, fingers and cheeks pink – they were always blue before. My name is Shane and my daughter Olivia is 11 years old with only half a working heart. After 10 years of … Continued

Emma’s story

After two miscarriages I fell pregnant again, with a baby that had only half a working heart. We found out at the 20 week scan that there was something wrong with our baby’s heart. A week or so later we saw a specialist who confirmed that it was Pulmonary Atresia, in short, our baby would … Continued

Be social with us - our latest tweets and posts

    January is an extremely popular time for holiday-shoppers and many of our members will now be thinking of grabbing themselves an early deal for their summer holidays 🏖

    But what things should heart-families consider before booking their perfect break? This week, we’ll be posting our travel tips to guide you through the holiday-booking process ☑️

    We’ll be talking about travel insurance, oxygen, health care and much more. If you have any questions about travel in the meantime - call us on 0121 455 8982 or drop us a private message, we’re here to help you ❤️
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    14 hours ago  ·  

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    Get on your bike in 2020 for children with half a heart! ❤️

    We have places available in the iconic London to Brighton cycle ride. Taking place on 13th September, the 55 mile route is the perfect challenge for experienced and inexperienced cyclists alike.

    For more details and to sign up, visit: www.lhm.org.uk/get-involved/fundraising/events/bike-rides/london-to-brighton-2020
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    2 days ago  ·  

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