This area of the website allows visitors to read individual family stories.

There are experiences from parents and young members across the age groups and with many different single ventricle conditions. Further stories can be seen on the Little Hearts Matter blog which can be found by clicking this link: http://heartlog.tumblr.com.

If you would like to contribute your personal story just email us at [email protected].

The Stories My Parents Tell Me About The Whole Experience Scare Me- Thomas Messer

Thomas Messer is a 19 year old musician from Scotland with half a heart, or Hypoplastic Left Heart Syndrome (HLHS). Over the last 19 years Tom has learnt to live with HLHS and all the challenges it has presented to him. His mum, Carole, said: “He copes really well and never complains. Transition has not … Continued

Shane tells Olivia’s story

After my daughter’s third heart operation I broke down in tears because it was the first time I had ever seen her lips, fingers and cheeks pink – they were always blue before. My name is Shane and my daughter Olivia is 11 years old with only half a working heart. After 10 years of … Continued

Emma’s story

After two miscarriages I fell pregnant again, with a baby that had only half a working heart. We found out at the 20 week scan that there was something wrong with our baby’s heart. A week or so later we saw a specialist who confirmed that it was Pulmonary Atresia, in short, our baby would … Continued

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    Living every day being different from your peers is frustrating.
    So it is time to reward young people striving to manage the challenges that having half a heart creates. Little Hearts Matter has created a series of awards for 8 – 18 year olds that aim to encourage young people living with half their heart to learn more about their condition and how to manage the challenges they face every day. For more information about the Brave Heart Awards and nomination forms, please follow the link
    www.lhm.org.uk/zipper-zone/lhm-brave-heart-awards/
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    If you're planning on hosting a get together with family and friends this summer, why not make it a Summer Celebration in aid of Little Hearts Matter? It's the perfect way to enjoy the sun and raise funds to support children with half a heart. Request your pack here bit.ly/2TlDj9U ... See MoreSee Less

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