This area of the website allows visitors to read individual family stories.

There are experiences from parents and young members across the age groups and with many different single ventricle conditions. Further stories can be seen on the Little Hearts Matter blog which can be found by clicking this link: http://heartlog.tumblr.com.

If you would like to contribute your personal story just email us at [email protected].

The Stories My Parents Tell Me About The Whole Experience Scare Me- Thomas Messer

Thomas Messer is a 19 year old musician from Scotland with half a heart, or Hypoplastic Left Heart Syndrome (HLHS). Over the last 19 years Tom has learnt to live with HLHS and all the challenges it has presented to him. His mum, Carole, said: “He copes really well and never complains. Transition has not … Continued

Shane tells Olivia’s story

After my daughter’s third heart operation I broke down in tears because it was the first time I had ever seen her lips, fingers and cheeks pink – they were always blue before. My name is Shane and my daughter Olivia is 11 years old with only half a working heart. After 10 years of … Continued

Emma’s story

After two miscarriages I fell pregnant again, with a baby that had only half a working heart. We found out at the 20 week scan that there was something wrong with our baby’s heart. A week or so later we saw a specialist who confirmed that it was Pulmonary Atresia, in short, our baby would … Continued

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    Colin, Grandparent to Thomas who is 15 and was born with Hypoplastic Left Heart Syndrome, talks about when he learnt that his unborn grandson had only half a heart.

    “Imagine the anguish of excited grandparents who are eagerly awaiting the results of their daughter's 20 week scan only to find that their unborn grandson has a major heart condition.”

    "Being referred to Little Hearts Matter seemed an empty consolation, yet this wonderful charity has provided support, encouragement and, probably most important, hope both before birth and in the 15 years subsequently."

    Alongside his wife Christine, Colin has raised over £8,600 for Little Hearts Matter this year alone, providing us with vital resources that we need to support our families and make them feel less frightened and isolated throughout their half-a-heart journey. Thank you so much for everything you have both done for us.

    We hope you can take some inspiration from Colin's passion and generosity this Christmas, follow in his footsteps and purchase a patch on our Visufund blanket.

    Click here to donate: www.visufund.co.uk/lhm-wrap-a-blanket

    Thank you ❤
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    14 hours ago  ·  

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    A massive thank you to the amazing Rowan who was the narrator in our Christmas video!

    Rowan is a big brother to Bobby who has half a heart and he kindly stepped in to help us tell the story of so many half a heart families. We think he did a fantastic job!

    If you haven't done so, please go to visufund.co.uk/lhm-wrap-a-blanket to buy a patch and wrap a blanket of support around more families like Rowan's.

    Thank you ❤
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    2 days ago  ·  

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