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    Meet Dion, 20 years old with Hypoplastic Left Heart Syndrome.

    “We just wanted to say how very proud as a family we are of Dion, he has come so far and is doing the best he can.”

    Shared by LHM Parent member Melissa, thank you.     ... See MoreSee Less

    1 hour ago  ·  

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    Most children born with a single ventricle heart undergo a series of open heart surgeries from a very early age. In our eyes, they are all champions in their own special way.

    The medical experiences of these families is now being researched by a team of NHS specialists, with an aim to shape the future of patient experience for children affected by congenital heart disease.

    We have collaborated with the NHS to take part in this special and incredibly important research project. It is called Champion and is open to members of Little Hearts Matter – parents, adults and teenagers.

    We urge you to join the study, it is so important to our community and will help to drive real positive changes. All you have to do is answer a few questions. Please complete an application form and you will be contacted by LHM with more info.

    Here is the application form 👉 bit.ly/35KLG7n

    Photo of Acer, TGA, and VSD, kindly shared by parent member Katie, thank you.     ... See MoreSee Less

    13 hours ago  ·  

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Registered Office: 75 Harborne Road, 4th Floor, Edgbaston, Birmingham, B15 3BU

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