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A very inspirational half-a-heart story from across the pond ❤️ Shout out to @bostonherald for raising vital awareness twitter.com/bostonherald/s…
Calling all parents and professionals!!!!! 🧡💛💚💜 Let's hear it from the siblings 🙌🏼🙌🏼 #congenitalheartdisease #heartfamilies @echoukcharity @CHFed @LHM_UK @Sibs_uk @YAHBCH @GOSHCharity @GoshOrchid twitter.com/AlpsHeart/stat…

introducing ‘Umph!’ a storybook created by one of our amazing grandparent members, Kathy.“My grandson, Arthur, is twenty months old and has a single ventricle heart condition. In April I attended your open day with my daughter in law and Arthur. It was a very helpful day and I felt so grateful for the work of LHM – thank you. One of the things I took away from the day was the need to prepare Arthur as well as we can for the operations he will face. It seemed like the sooner we start to do that the better, but how to explain to a toddler? So I made a story for Arthur.”We loved Umph! So much so that it’s now available in digital format on our website, give it a read and download it onto your smartphone here: www.lhm.org.uk/wp-content/flipbooks/umph-booklet/data/book.html ... See MoreSee Less

22 hours ago ·

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"Daisy and Isabella both have Hypoplastic Left Heart Syndrome, they were born within days of each other and have recently celebrated their 5th birthdays! The girls are also both currently awaiting the Fontan procedure and receive their treatment for their hearts at the Freeman Hospital, under the care of Dr Crossland. When we discovered that both families were currently on holiday down in the South West it was only right to arrange to meet for a day at the beach in the sunshine!"We are so delighted to see our heart families getting the chance to link with each other once again, a huge thank you to Rochelle for sharing this with us. ... See MoreSee Less

2 days ago ·

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Registered Office: 75 Harborne Road, 4th Floor, Edgbaston, Birmingham, B15 3BU

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