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    Most children born with a single ventricle heart undergo a series of open heart surgeries from a very early age. In our eyes, they are all champions in their own special way.

    The medical experiences of these families is now being researched by a team of NHS specialists, with an aim to shape the future of patient experience for children affected by congenital heart disease.

    We have collaborated with the NHS to take part in this special and incredibly important research project. It is called Champion and is open to members of Little Hearts Matter – parents, adults and teenagers.

    We urge you to join the study, it is so important to our community and will help to drive real positive changes. All you have to do is answer a few questions. Please complete an application form and you will be contacted by LHM with more info.

    Here is the application form 👉 bit.ly/35KLG7n

    Photo of Acer, TGA, and VSD, kindly shared by parent member Katie, thank you.
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    10 hours ago  ·  

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    If you didn't snap it 📸 it didn't snow 😉

    Great to see so many of our young members getting out and enjoying some fun in the snow! ☃️

    Keeping hands, feet and noses warm when you only have half a heart can be a challenge, so please remember we have our winter warmers information, linked below 👇

    bit.ly/2YeuItK

    Half a heart, not half a life ❤
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    1 day ago  ·  

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