Our Awareness Week is here! ❤️

Our awareness week returns, but we would have never expected things to change so much in 12 months. Last May, we launched our inaugural awareness week in celebration of 25 years of Little Hearts Matter. The campaign was a success, we were able to bring the community together, reach new audiences and tell the world about Single Ventricle Heart Conditions.

It seemed only right for us to bring the awareness week back for 2020, but obviously these are very strange and challenging times we are living in. Everyone is feeling the effects of Covid-19 in one way or another. In particular, for our members, this is a very difficult time – with fear, isolation and lack of understanding more prevalent now than ever.

So this year, we want to tell the world about life with half a heart as it is now. We want to help the public understand how our members have been affected by Covid-19 and we also want to celebrate their strength and bravery in this incredibly tough situation. The more everyone understands, the greater chance that children born with half a heart can live their life to its full potential (that their condition will allow).

What to expect…

Please make sure you are following us across Facebook, Twitter and Instagram. We have a LOT of really important content planned and we wouldn’t want you to miss any of it! For the next 7 days, you can expect stories, quotes, facts and films – all with an aim to remind the world that Little Hearts Matter! The week will be topped off with an evening of live-streamed entertainment from the LHM family itself, awesome stuff! Keep an eye on our Facebook for more info!

How to get involved…

Here are some super simple but really helpful ways for you to support our Awareness Week coverage…

  • Add our Twibbon to your profile! A simple but really effective way of turning heads and showing your support for our awareness week, click here to get started!
  • Sharing is caring! We’ll be posting some very important messages and videos over the next 7 days… clicking share helps us reach a wider audience! Visit our page here!

In these testing times, our members are fighting and inspiring us all, because they are some of the bravest people we know.This awareness week, you can help us give them a voice, to share their amazing stories and to remind the world that little hearts matter.

Thank you so much for getting involved,

The LHM team


Be social with us - our latest tweets and posts

    Reaching Milestones in Lockdown | Elijah's Fontan Progress

    An update from LHM parent member Michelle, mum to Elijah who had his Fontan operation 2 years ago...

    "Hard to believe this was 2 years ago, and then a pic of him now! 😍 We couldn’t have got through our journey so far without the amazing support from the NHS and the LHM team. We will always be thankful."

    Half a Heart, Not Half a Life x
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    13 hours ago  ·  

    View on Facebook

    The Youth Zone is our dedicated support network for young adults aged 11 to 17 living with a single ventricle heart condition. During lock-down, we have been working hard to keep our youth members supported and connected with each other.

    We just wanted to shine some light on this awesome bunch, as they have come so far and achieved so much during the Covid Crisis. One of our highlights being this video, a 26 minute exercise challenge via Zoom, all in support of LHM for the 2.6 challenge. They smashed the routine and raised over £500 for us! Thank you.

    The group keeps in touch through regular Netflix parties and lots of healthy discussion on the private message forums, as well as having access to 1-1 support provided by LHM whenever they need it.

    None of this would be possible without our youth leader Lexie and our awesome youth mentors, please can we all thank them for the incredible work they have been doing for these brave young people throughout this crisis.

    Visit the youth zone here lhm.org.uk/youth-zone/
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    21 hours ago  ·  

    View on Facebook