Having Half a Working Heart and returning to school – Covid-19

Having Half a Working Heart and returning to school. – Covid-19. Many LHM members, and in some cases their teachers, have been asking questions about the return to school of children with single ventricle heart disease. Children with half a working heart have mainly been highlighted as vulnerable, some as extremely vulnerable, throughout the first … Continued

LHM is a Persimmon ‘Building Futures’ Finalist!

Help us to help young people with half a heart achieve their full potential. Can you imagine what it must be like to discover that you only have half a working heart and that you are different from your friends. Every year hundreds of children are born with only one heart pump, something that can … Continued

LHM And All That Jazz – Musical Theatre Competition

Chicago, Mary Poppins, my Fair Lady, Wicked, We Will Rock You, Phantom of the Opera and the Lion King are amongst some great Musicals with some great show stopping songs just waiting to be sung by the Little Hearts Matter members. What better way to celebrate the amazing talent to be found in LHM than … Continued

Stepping out of Shielding

Stepping out of Shielding – providing information to help you make choices  Having spent 12 weeks in a degree of isolation, because of the risks of Covid-19, the advice is now changing. Whether you have been in full shielding or you have chosen to shield because of the vulnerability of a child, teenager or adult … Continued

COVID-19: BCCA updated practical guidance for patients, parents, charities and support groups, 11 June 2020

COVID-19: BCCA updated practical guidance for patients, parents, charities and support groups, 11 June 2020 Introduction The COVID-19 pandemic has been challenging both for those who provide healthcare services and for patients and their families. Clinical staff are grateful for the patience and support demonstrated by patients and families as they continue to work to … Continued

LHM Celebrating Success: Carys’ Half a Heart Story ❤️

Meet Carys, one of our talented adult members born with a Single Ventricle Heart Condition, she, like so many of our young members is also dyslexic. At just 23 years old, Carys has achieved something amazing, she has been awarded a hard-earned medical degree. She is now Dr Carys MBChB MSc (Dis). LHM Chief Exec … Continued

BCCA Responds to LHM’s Schools Questions

Download a copy of this document here.

British Congenital Cardiac Association Response To LHM

Dear Suzie, Thank you for your email. The BCCA has produced guidance for patients with congenital heart disease with respect to Covid-19 which was published on 18/03/2020 and updated 27/03/2020.   https://www.bccauk.org/pages/news_box.asp?NewsID=19495711.  These outline the BCCA advice that patients with single ventricle circulation should be categorised within the vulnerable group.  The guidance acknowledges selected patients … Continued

LHM Letter To Professor Paul Cosford

Professor Paul Cosford Medical Director Public Health England                         5th May 2020 Dear Professor Cosford Re: Coronavirus and complex non-correctable congenital heart disease  Little Hearts Matter is a national organisation that supports, informs and advocates for thousands of children, teenagers, young adults, and their families, affected by complex congenital heart conditions that lead to having a … Continued

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