Children’s and Parents’ Consent to Heart Surgery – University College London

Children’s and Parents’ Consent to Heart Surgery Research project 2019-2021, September 2021 Thank you very much to everyone who helped with our research from Priscilla, Rosa and Katy at University College London. Here is a short report for the children, young people and parents who helped us.  Please let us know if you would like to … Continued

World Heart Day 2021 ❤️

It's here! Happy World Heart Day everyone! Today we are championing LHM and the incredible people that make our half-a-heart community so special. To our amazing supporters, we want to tell your friends about LHM today, so please don't forget to hit share on all of our posts. Every single share helps us raise vital … Continued

LHM community reunited at summer family event

A special coming together of families on the half a heart journey.   After almost two years, the LHM family sees a return to physical events with an exciting summer event at the Pioneer Centre in Cleobury Mortimer. The site welcomed almost 300 members of the charity for a weekend of fun activities and much … Continued

RSV (Respiratory Syncytial Virus) Update

RSV (Respiratory Syncytial Virus) is a common respiratory illness that is normally seen in the winter months but this year it seems to be springing up in children over the summer, partly because there was less chance for it to spread over the winter. We know that children with congenital heart disease can have a … Continued

BCCA Update on COVID-19 Vaccination in Children

This statement comes from the British Congenital Cardiac Association, published 20th July 2021.  The Joint Committee on Vaccination and Immunisation (JCVI) has issued new paediatric guidance on COVID-19 vaccination. The full guidance can be found at: https://www.gov.uk/government/news/jcvi-issues-advice-on-covid-19-vaccination-of-children-and-young-people The JCVI is advising that children at increased risk of serious COVID-19 disease are offered the Pfizer-BioNTech vaccine. That includes children … Continued

Matt keeps running to support young people with half a working heart

Friend of LHM, Matthew Abbott, is currently in the midst of an incredible charity fundraising project that will see him complete 5 Rat Race challenges before the end of the year, a total of 182 miles covered and 26,101ft of ascent! Matt started the challenge in June with the aim of raising £750 for Little … Continued

Football and living with half a working heart

Young people with half a working heart generally do not have the energy levels of their peers. Needing extra breaks to catch your breath can make it tricky to keep up with friends. So, at a time when the Euros is the talk-of-the-playground, how inclusive can football be for young people with a single ventricle … Continued

Summer Family Event

We are delighted to invite Little Hearts Matter’s members to join us for an event over the August Bank Holiday Weekend. The last year has been a difficult one for us all. The LHM team have created a summer event, outdoors and full of fun. The event is based in Cleobury Mortimer, Shropshire, for some … Continued

Dr Gil Wernovsky – Outcomes of the Fontan Circulation – LHM Open Day Presentation

We were delighted that Dr Gil Wernovsky, world renowned congenital cardiologist and cardiac intensivist, agreed to speak at our Virtual Open Day to present his findings on outcomes for the Fontan Circulation.  Dr. Wernovsky's special clinical interests include the inpatient care of infants with critical congenital heart disease (CHD) and mechanical support of the failing … Continued

BCCA COVID-19 infection in Congenital Heart Disease study

BCCA COVID-19 infection in Congenital Heart Disease study

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