LHM’s response to Pulse-oximetry Screening for Critical Congenital Heart Defects NSC Consultation

As the representative of over 5800 members, all affected by single ventricle heart disease, Little Hearts Matter responded to the request for more information to support the introduction of Oxygen Saturation Screening in the neonatal period. To read Little Hearts Matter’s response to the UK National Screening Committee, please click here.

Mirror Online article My Life with Half a heart..Only Half Understood.

As part of LHM’s Awareness week the Mirror online published an amazing article all about the My Life with Half a Heart…Only Half Understood survey. Warren Manger, a journalist and LHM parent member, wrote the article which features the stories of two of our young members, Amber and John. We would like to thank them, … Continued

DM Thomas Foundation supports LHM Energy Project

DM Thomas Foundation for Young People has awarded a grant of £7,980 to Little Hearts Matter for the ‘Energy Project’ to help children with heart conditions to better understand and manage their energy levels. DM Thomas Foundation for Young People is committed to transforming the lives of sick, disabled and disadvantaged young people in communities … Continued

Little Hearts Matter could be on the brink of something special

Today our membership consists of over four and a half thousand different aged members, each seeking diverse things from the charity but also coming together to support each other and share experiences.  This is an amazing growth step which I am passionate that we achieve because there isn’t anywhere else offering this specialised support. We … Continued

B&M Waste’s ‘Team Brum’ Take On the Great North Run for Local Charity

Continuing their commitment to supporting local charities, B&M Waste in Birmingham have raised over £1000 for Little Hearts Matter after completing the Great North Run, in Tyneside. The only charity in Britain to support those families affected by single ventricle conditions of the heart, Little Hearts Matter is an extraordinary charity – and it’s clear … Continued

money.co.uk lends its financial support to LHM

money.co.uk, a financial comparison website based in Cirencester, Gloucestershire has donated a total of £10,000 to Little Hearts Matter. The business donated 10% of their company profits to charities last year, giving members of their team a chance to choose a charity each to donate to. Hannah Maundrell from money.co.uk said; “Our team are delighted … Continued

Response to NHS England’s decision about the future of congenital and children’s heart services in England

  Over the last twenty years the care and treatment of children and adults with congenital heart disease has been repeatedly discussed, reviewed and assessed. This relentless scrutiny, with no confirmed forward plan, has left the service underfunded and lacking the energy needed for the ambition that will allow for growth or the advancement of … Continued

Developing and testing evidence based patient information on outcomes for families affected by Hypoplastic Left Heart Syndrome

Little Hearts Matter have joined with the Great Ormond Street Hospital Team to help them look at ways to improve their understanding of the outcomes from surgery but most importantly how that information is communicated to families. We are looking for families affected by hypoplastic left heart syndrome to help us with a ‘quality improvement … Continued

The Bi Annual Little Hearts Matter Survey

Dear Little Hearts Matter Members Little Hearts Matter relies on the thoughts, comments and ideas of our members to: Forward the single ventricle heart voice in arenas for change. Gain a collective view on areas of member concern. Gain the care, information and support priorities of the membership. Plan support and information services. Gain ideas … Continued

Great British Sewing Bee contestant creates exclusive tutorial for Little Hearts Matter

Angeline Murphy, a Great British Sewing Bee contestant in 2016, has produced an exclusive tutorial for the heart charity Little Hearts Matter (LHM) for their Handmade Hearts fundraiser. Little Hearts Matter is a small national UK charity that supports families when their baby is diagnosed with half a working heart. The charity’s Handmade Hearts fundraiser … Continued

Be social with us - our latest tweets and posts

    "University gave me the opportunity to take control of my heart condition. It was definitely a challenge but 100% worth it".

    Andrew is one of our members, he is also a university graduate! 👨‍🎓He tells a story of overcoming fears, finding new confidence and preparing for adult life after graduation.

    This is Andrew’s story, read it here: bit.ly/2kDXXWF

    #MondayMotivation
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    11 hours ago  ·  

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    👨‍🎓It's University arrival week! 👩‍🎓

    Some of our members will be moving into their University accommodation this week and we couldn’t be more excited for them 🙌

    Higher education is a daunting prospect, but this is an amazing opportunity for you to meet new people, gain some valuable life experience and work towards your chosen career. Just remember, we are here to support you in this new chapter, drop us a PM if you have a question or need someone to talk to.

    Good luck from the LHM family! ❤️
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    15 hours ago  ·  

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