BCCA Updated Guidance: Returning to Work & Education

COVID-19: BCCA updated guidance for patients, parents, charities and support groups: Returning to work and education, 2 September 2020 Introduction Exiting the period of lockdown can be a worrying time for patients of all ages who are living with congenital heart disease, particularly for those clinically extremely vulnerable patients who have been “shielding” during the … Continued

Having Half a Working Heart and returning to school – Covid-19

Having Half a Working Heart and returning to school. – Covid-19. Many LHM members, and in some cases their teachers, have been asking questions about the return to school of children with single ventricle heart disease. Children with half a working heart have mainly been highlighted as vulnerable, some as extremely vulnerable, throughout the first … Continued

LHM is a Persimmon ‘Building Futures’ Finalist!

Help us to help young people with half a heart achieve their full potential. Can you imagine what it must be like to discover that you only have half a working heart and that you are different from your friends. Every year hundreds of children are born with only one heart pump, something that can … Continued

LHM And All That Jazz – Musical Theatre Competition

Chicago, Mary Poppins, my Fair Lady, Wicked, We Will Rock You, Phantom of the Opera and the Lion King are amongst some great Musicals with some great show stopping songs just waiting to be sung by the Little Hearts Matter members. What better way to celebrate the amazing talent to be found in LHM than … Continued

Stepping out of Shielding

Stepping out of Shielding – providing information to help you make choices  Having spent 12 weeks in a degree of isolation, because of the risks of Covid-19, the advice is now changing. Whether you have been in full shielding or you have chosen to shield because of the vulnerability of a child, teenager or adult … Continued

COVID-19: BCCA updated practical guidance for patients, parents, charities and support groups, 11 June 2020

COVID-19: BCCA updated practical guidance for patients, parents, charities and support groups, 11 June 2020 Introduction The COVID-19 pandemic has been challenging both for those who provide healthcare services and for patients and their families. Clinical staff are grateful for the patience and support demonstrated by patients and families as they continue to work to … Continued

LHM Celebrating Success: Carys’ Half a Heart Story ❤️

Meet Carys, one of our talented adult members born with a Single Ventricle Heart Condition, she, like so many of our young members is also dyslexic. At just 23 years old, Carys has achieved something amazing, she has been awarded a hard-earned medical degree. She is now Dr Carys MBChB MSc (Dis). LHM Chief Exec … Continued

BCCA Responds to LHM’s Schools Questions

Download a copy of this document here.

British Congenital Cardiac Association Response To LHM

Dear Suzie, Thank you for your email. The BCCA has produced guidance for patients with congenital heart disease with respect to Covid-19 which was published on 18/03/2020 and updated 27/03/2020.   https://www.bccauk.org/pages/news_box.asp?NewsID=19495711.  These outline the BCCA advice that patients with single ventricle circulation should be categorised within the vulnerable group.  The guidance acknowledges selected patients … Continued

Be social with us - our latest tweets and posts

    "Finally back in preschool this week after 6 months at home!!! ❤️💕 To say that Elliot was happy to finally get to play with his friends would be a massive understatement 😍"

    "Thank you so much Little Hearts Matter for the teacher information pack we have given to Elliot’s preschool. It is reassuring to know that they now have all the information they need to keep him safe and support him in the best possible way ❤️"

    Feedback like this really makes our day. This fantastic message came from Anna, mum to Elliot who has DILV, awaiting his Fontan surgery in the next few months. Thank you Anna. We have been working hard to create new resources for our members and we are so pleased that you found the teachers pack useful.

    Half a heart, not half a life x
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    8 hours ago  ·  

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    LHM Brave Heart Awards! Empowering young people living with half a working heart today.

    Maybe you know an LHM youth member who has achieved something great or has shown a real understanding of their heart condition? Let’s give them some recognition with a Brave Heart Award!

    You can nominate a young person with half a heart for a Brave Heart Award by going to our website here: www.lhm.org.uk/youth-zone/lhm-brave-heart-awards/
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    12 hours ago  ·  

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