Members Respond to LHM’s Winter Newsletter

The Little Hearts Matter newsletter is one of the many ways that we keep in touch with our members and supporters, updating them with a carefully selected mix of news, stories and information. This month saw the release of our winter edition of the 25th anniversary newsletter and we received this amazing quote from one … Continued

LHM’s response to Pulse-oximetry Screening for Critical Congenital Heart Defects NSC Consultation

As the representative of over 5800 members, all affected by single ventricle heart disease, Little Hearts Matter responded to the request for more information to support the introduction of Oxygen Saturation Screening in the neonatal period. To read Little Hearts Matter’s response to the UK National Screening Committee, please click here.

Mirror Online article My Life with Half a heart..Only Half Understood.

As part of LHM’s Awareness week the Mirror online published an amazing article all about the My Life with Half a Heart…Only Half Understood survey. Warren Manger, a journalist and LHM parent member, wrote the article which features the stories of two of our young members, Amber and John. We would like to thank them, … Continued

DM Thomas Foundation supports LHM Energy Project

DM Thomas Foundation for Young People has awarded a grant of £7,980 to Little Hearts Matter for the ‘Energy Project’ to help children with heart conditions to better understand and manage their energy levels. DM Thomas Foundation for Young People is committed to transforming the lives of sick, disabled and disadvantaged young people in communities … Continued

Little Hearts Matter could be on the brink of something special

Today our membership consists of over four and a half thousand different aged members, each seeking diverse things from the charity but also coming together to support each other and share experiences.  This is an amazing growth step which I am passionate that we achieve because there isn’t anywhere else offering this specialised support. We … Continued

B&M Waste’s ‘Team Brum’ Take On the Great North Run for Local Charity

Continuing their commitment to supporting local charities, B&M Waste in Birmingham have raised over £1000 for Little Hearts Matter after completing the Great North Run, in Tyneside. The only charity in Britain to support those families affected by single ventricle conditions of the heart, Little Hearts Matter is an extraordinary charity – and it’s clear … Continued

money.co.uk lends its financial support to LHM

money.co.uk, a financial comparison website based in Cirencester, Gloucestershire has donated a total of £10,000 to Little Hearts Matter. The business donated 10% of their company profits to charities last year, giving members of their team a chance to choose a charity each to donate to. Hannah Maundrell from money.co.uk said; “Our team are delighted … Continued

Response to NHS England’s decision about the future of congenital and children’s heart services in England

  Over the last twenty years the care and treatment of children and adults with congenital heart disease has been repeatedly discussed, reviewed and assessed. This relentless scrutiny, with no confirmed forward plan, has left the service underfunded and lacking the energy needed for the ambition that will allow for growth or the advancement of … Continued

Developing and testing evidence based patient information on outcomes for families affected by Hypoplastic Left Heart Syndrome

Little Hearts Matter have joined with the Great Ormond Street Hospital Team to help them look at ways to improve their understanding of the outcomes from surgery but most importantly how that information is communicated to families. We are looking for families affected by hypoplastic left heart syndrome to help us with a ‘quality improvement … Continued

The Bi Annual Little Hearts Matter Survey

Dear Little Hearts Matter Members Little Hearts Matter relies on the thoughts, comments and ideas of our members to: Forward the single ventricle heart voice in arenas for change. Gain a collective view on areas of member concern. Gain the care, information and support priorities of the membership. Plan support and information services. Gain ideas … Continued

Be social with us - our latest tweets and posts

    A few weeks ago, we shared a news article about John and Kate Carlton who have been fundraising for Little Hearts Matter. This family’s amazing support doesn’t stop there, as their 9 year old daughter May also arranged for her school to take part in a non-uniform day for Little Hearts Matter. She put together a PowerPoint presentation and spoke to her Headteacher who agreed to hold a fundraising day for LHM.

    Just look at how many donations were received on the day – well done May, you’re a star! ❤️ To get involved and register your fundraising, click here: www.lhm.org.uk/get-involved/fundraising/register-your-fundraising/
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    Youth Support

    There are young people living with half a heart across the country, many aged between 11 and 18. It is massively important for all of these brave young people to have access to the care, guidance and support they need – allowing them to live life to its full potential that their heart will allow.

    Lexie runs our Youth Services, supporting our youth members in a variety of ways, throughout their half a heart journey. These young members are invited to Activity Weekends and Education Days where they will explore their heart condition and seek solutions to the challenges that having half a heart brings. They will also have an opportunity to meet with other young members, online and in person, making friendships and helping them feel less alone.

    Did you know our youth members also consist of siblings? We know it can be a tough road for them too, so they also have a chance to chat with each other for support from people their age that truly understand. You can find out more about our Youth Services by clicking here www.lhm.org.uk/youth-zone/
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