Stepping out of Shielding

Stepping out of Shielding – providing information to help you make choices  Having spent 12 weeks in a degree of isolation, because of the risks of Covid-19, the advice is now changing. Whether you have been in full shielding or you have chosen to shield because of the vulnerability of a child, teenager or adult … Continued

COVID-19: BCCA updated practical guidance for patients, parents, charities and support groups, 11 June 2020

COVID-19: BCCA updated practical guidance for patients, parents, charities and support groups, 11 June 2020 Introduction The COVID-19 pandemic has been challenging both for those who provide healthcare services and for patients and their families. Clinical staff are grateful for the patience and support demonstrated by patients and families as they continue to work to … Continued

LHM Celebrating Success: Carys’ Half a Heart Story ❤️

Meet Carys, one of our talented adult members born with a Single Ventricle Heart Condition, she, like so many of our young members is also dyslexic. At just 23 years old, Carys has achieved something amazing, she has been awarded a hard-earned medical degree. She is now Dr Carys MBChB MSc (Dis). LHM Chief Exec … Continued

BCCA Responds to LHM’s Schools Questions

Download a copy of this document here.

British Congenital Cardiac Association Response To LHM

Dear Suzie, Thank you for your email. The BCCA has produced guidance for patients with congenital heart disease with respect to Covid-19 which was published on 18/03/2020 and updated 27/03/2020.   https://www.bccauk.org/pages/news_box.asp?NewsID=19495711.  These outline the BCCA advice that patients with single ventricle circulation should be categorised within the vulnerable group.  The guidance acknowledges selected patients … Continued

LHM Letter To Professor Paul Cosford

Professor Paul Cosford Medical Director Public Health England                         5th May 2020 Dear Professor Cosford Re: Coronavirus and complex non-correctable congenital heart disease  Little Hearts Matter is a national organisation that supports, informs and advocates for thousands of children, teenagers, young adults, and their families, affected by complex congenital heart conditions that lead to having a … Continued

LHM Letter To The BCCA And The CHD Clinical Reference Group

  To the BCCA and the CHD Clinical Reference Group Re: Single functioning ventricle heart disease and Covid-19 The last few months have seen a rapid health service and Government reaction to Covid-19 and the advice needed by people who are vulnerable and greatly at risk if they catch the virus. Early in the process, … Continued

Exercise When You Have Half A Heart, During Lockdown

We know that many of our young members have been told to isolate themselves to just the house and garden. Some are allowed a walk, run or ride in a wide open space. Getting used to being restricted is tough but working to try and keep fit can be even more of a challenge. We … Continued

Answering questions about ongoing Congenital Cardiac care.

Answering questions about ongoing Congenital Cardiac care With so many changes to healthcare announced in the news many LHM families, teenagers and adults have been asking about what hospitals are doing to keep them safe if they have an outpatient appointment or inpatient treatment planned during the Coronavirus outbreak. Be reassured that doctors and nurses … Continued

BCCA COVID-19 Update – 27.03.2020

Updated BCCA COVID-19 guidance for extremely vulnerable groups with congenital heart disease (27 March 2020) Download Link: COVID_19_BCCA_Update_27_March_2020

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    Hope 🌈

    "Hello! This is my first time posting since recently joining this group. Here’s my favourite lock-down picture of my son Toby (Complex Pulmonary Atresia), he’s just over 2 years old."

    "We’ve been shielding and now very nervously trying to get back to some normality...for Toby and his 5 year old sister."

    Quote shared by LHM parent member Carlie x
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    Reaching Milestones in Lockdown | Elijah's Fontan Progress

    An update from LHM parent member Michelle, mum to Elijah who had his Fontan operation 2 years ago...

    "Hard to believe this was 2 years ago, and then a pic of him now! 😍 We couldn’t have got through our journey so far without the amazing support from the NHS and the LHM team. We will always be thankful."

    Half a Heart, Not Half a Life x
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    3 days ago  ·  

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